by AUBRIE LEE I have a disability. It has manifested differently throughout my life, I have felt differently about it in various stages of my life, and people have treated… Read More »
Finding beauty in disability
Holiday gift ideas
If you are scrambling for last-minute holiday gifts to delight the FSHers in your life, here are a few suggestions. We’d love to hear about your best holiday gift ideas… Read More »
Freedom Through AFOs
by ROD FULMER, McDonough, Georgia Who wants to wear ankle braces? I wish I didn’t have to wear any, but because I need them, I’m glad I found carbon fiber braces… Read More »
Our Guide for Schools
The FSH Society’s Guide for Schools is available online for download and print here. Created by a team of national experts, this booklet provides information about FSHD and the impact… Read More »
The flu season is upon us. Should you get the vaccine?
FSHD patients may be concerned about the effect of injections on their muscles, and others worry about exposure to chemicals in vaccines, but FSHD medical experts agree that any potential… Read More »