We have published a new e-brochure, “Not Alone,” by Kelly Mahon Hessler. Based on interviews with a wide range of FSH muscular dystrophy patients, parents, and partners, this e-brochure assures… Read More »
For newly (and not so newly) diagnosed people
FSH Society Talk Radio: Marketer, mom, and advocate Taylor Quigg
Join us on September 26th, 9:00 PM EST / 8:00 PM CST for a live, on-air interview with Taylor Quigg, a wife and mother of two who lives in the suburbs of… Read More »
Don’t let this diagnosis limit you
When one path ended, a new one opened up by Nelson Dronet, Sulphur, Louisiana I would like to take a moment to share my story in the hope that it reaches… Read More »
Me and my cowboy boots
From the department of silver linings by Jeff Gibler, Humble, Texas When I was a kid we would come to the United States during the summer to visit my paternal grandparents… Read More »
Managing breathing issues
Notes from our webinar with John Bach, MD by June Kinoshita, FSH Society The best practices for managing breathing issues were the subject of the June 19, 2018, FSH Society webinar… Read More »