We are pleased to share slides and videos from our conference held in San Francisco on July 15, 2017. Thank you to our wonderful speakers and to our sponsor Acceleron… Read More »
Bay Area FSHD Family Day Conference Videos and Slides
Tips for air travel with a power wheelchair
Howard Chabner, a lawyer, disabilities advocate, and long-time FSH Society Board member, loves to travel internationally and has much experience with addressing the innumerable obstacles that impeded disabled travelers. He… Read More »
Radio Show – Steven Blier, musician extraordinaire
LISTEN LIVE ON WEDNESDAY, SEPTEMBER 27, 2017, HERE. A podcast of the interview will be available at this link. This month’s radio show guest is Steven Blier, a pianist and… Read More »
Gimpy girl goes birding
A 2017 mid-Atlantic, physically accessible birding “Big Year” by DEB CALHOUN, Frederick County, Maryland Midsummer last year, I became determined to fight back against FSH muscular dystrophy. Most of my friends and… Read More »
Relive Team FSHD Cycling’s Race Across America!
Check out this amazing video of Team FSHD Cycling’s epic race this summer. Huge thank you to Emily Pollock for creating this priceless documentary. Warning: Have a box of tissues… Read More »