by Amy Tesolin-Gee, Midland, Michigan Several FSHD patients, family members, and FSHD-experienced clinicians came together in Ann Arbor on June 4, 2016, for an educational meeting including lots of helpful, informal… Read More »
Waking up your muscles with Lynnette Rasmussen
Looking Back on A Year Full of Strength
As we look back on the incredible year we have had, we want to acknowledge those who have shared their inspirational stories, strength and commitment to continue to do the… Read More »
Living with FSHD: Katy Kat in the Hat (Video)
Ellen Feldman, filmmaker, created this documentary about a woman she met who has FSH muscular dystrophy. “Katy Kat in the Hat is a story about a woman who defies all… Read More »
We Want You to #ShareYourVictory!
At this year’s Inaugural CureFSHD National Gala on November 11, we look to celebrate not just the victories of our tireless researchers and fearless ambassadors, but also the small (yet… Read More »
Carden and Spencer Wyckoff to Set off on Piggyback Adventure through the Appalachian Trail
FSH Society Ambassador Carden Wyckoff and her brother Spencer are at it again! This time, they will be traveling 79-miles through the Georgia portion of the Appalachian Trail to raise… Read More »