Hot off the press, here’s our updated Physical Therapy brochure! Co-written by leading FSHD experts Katy Eichinger, PhD, Shree Pandya, PT, DPT, MS, and Wendy King, PT, the brochure provides… Read More »
Our new Physical Therapy brochure
Why I donated tissue
by MAUREEN EYE Centerport, New York In November of 2016, I underwent scapula fusion surgery in Baltimore, Maryland. During that surgery I had the privilege to donate muscle tissue for FSHD… Read More »
FSH Society Talk Radio on mindfulness in coping with FSHD
LISTEN LIVE HERE Wednesday, June 28, 2017, 9:00 pm EST / 8:00 pm CST Our guest is Carol S. Birnbaum, MD, a psychiatrist in private practice in Cambridge, Massachusetts. She is a… Read More »
New documentary tells one family’s story about FSH muscular dystrophy
FSH Society ambassador Lexi Pappas has just completed her first film documentary, based on her family’s multigenerational experience living with facioscapulohumeral muscular dystrophy. We learn how FSHD affects individual members of her… Read More »
Muscle Activation Exercises
Lynnette Rasmussen OTRL provides detailed, hands-on demonstrations of a variety of gentle exercises targeting specific muscles. Developed in collaboration with an FSH muscular dystrophy patient, these exercises demonstrate principles that… Read More »