Wednesday, May 31, 2017. 10:00 pm EST / 9:00 pm CST. LISTEN HERE! Chris is the voice of the NBA’s Brooklyn Nets and as founder of the Chris Carrino Foundation,… Read More »
FSH Society Talk Radio – A chat with Chris Carrino, voice of the Brooklyn Nets
The Moving Story of George Pollock’s quest to Race Across America
Board member George Pollock, who is racing across America this June to raise awareness and funds for FSHD, was featured in his high school’s magazine. In the article, George discusses… Read More »
My Boston Adventure: traveling solo with my wheelchair
Written by Trisha Lynn Sprayberry Las Vegas, Nevada My adventure began late Wednesday night, November 9, 2016. My fiancé, Erin, had dropped me off at the airport. With my suitcase… Read More »
Accessibility hacks, mobility aids, and tips (Part 2 of 3)
Written by Paul Shay Groton, Massachusetts Grab Bars. In conjunction with my half-steps, we added a conventional grab bar in the doorway to our garage. My wife came up with the… Read More »
Mom and Daughter with FSHD featured in Muscular Dystrophy News!
Two of our members, Diane and Lexi Pappas, were featured in Muscular Dystrophy News, sharing their struggles about living with FSHD. Diane is Lexi’s mother and the two live in… Read More »