As we come up on the last days of 2016, we are taking one final look back on the incredible year it has been, and one last moment to recognize… Read More »
Looking Back on a Year Full of Strength, Part 3 of 3
Looking Back on A Year Full of Strength, Part 2
As we continue to look back on the incredible year we have had, we want to recognize others who have shared their inspirational stories, strength and commitment to continue to… Read More »
Waking up your muscles with Lynnette Rasmussen
by Amy Tesolin-Gee, Midland, Michigan Several FSHD patients, family members, and FSHD-experienced clinicians came together in Ann Arbor on June 4, 2016, for an educational meeting including lots of helpful, informal… Read More »
Looking Back on A Year Full of Strength
As we look back on the incredible year we have had, we want to acknowledge those who have shared their inspirational stories, strength and commitment to continue to do the… Read More »
Living with FSHD: Katy Kat in the Hat (Video)
Ellen Feldman, filmmaker, created this documentary about a woman she met who has FSH muscular dystrophy. “Katy Kat in the Hat is a story about a woman who defies all… Read More »