At this year’s Inaugural CureFSHD National Gala on November 11, we look to celebrate not just the victories of our tireless researchers and fearless ambassadors, but also the small (yet… Read More »
We Want You to #ShareYourVictory!
Carden and Spencer Wyckoff to Set off on Piggyback Adventure through the Appalachian Trail
FSH Society Ambassador Carden Wyckoff and her brother Spencer are at it again! This time, they will be traveling 79-miles through the Georgia portion of the Appalachian Trail to raise… Read More »
Q&A with Dr. Rabi Tawil, Part 2
This is a continuation of our Q&A session with Rabi Tawil, MD, co-director of the MDA Neuromuscular Disease Clinic at the University of Rochester, New York, and lead author of… Read More »
Cool technology: Elevating walker chair
We’re excited to see this ingenious concept for a mobility device. It’s being developed by Garrett Brown, inventor of the steadycam. Shown trying out a prototype is Alan Brown, who… Read More »
Video diary: Ryan Levinson
FSH Society Ambassador Ryan Levinson just transmitted this video from his berth in Fakarava, a tiny atoll in the Tuamotu chain of French Polynesia! He shares how he has adapted his movements to… Read More »