A common household material keeps my feet from slipping by Bill Maclean, Blue Bell, Pennsylvania As FSHD progresses, many find that standing up becomes more difficult. As a result, one… Read More »
Tips & tricks for standing up
Distended belly with FSHD: A surgical reconstruction
…and perhaps refinements yet to be discovered. A first step. by Rick Whitehead, Knoxville, Tennessee I promoted using a double compression abdominal belt for years but was always looking for… Read More »
Marijuana and CBD
The Young Adults Zoom group hosted a session last night (March 18) with guests Claire Szabo-Casella and Lou Casella. They shared their experiences using cannabis-based products to address a variety… Read More »
Understanding your FSHD
To be able to take charge, you need to listen to your body by Lonwabo Nene, South Africa “I don’t know, but my right arm feels loose. In fact, my… Read More »
FSHD Representation in Film Fest Favorite ‘Good Bad Things’
Good Bad Things breaks barriers and earns accolades by Erin Saxon, FSHD Society In August, we shared exciting news about Good Bad Things, a film that promised to challenge perceptions… Read More »