Our May Feeling Fit Zoom group featured Arielle Levy, a physical therapist from Re+Active Physical Therapy founded by Julie Hershberg (a legend in the FSHD community). Following the introductory information… Read More »
Nerve mobility and pain
Connecting to others is essential to your health
Friendships are built intentionally by Gregg Lichtenstein, Margate City, New Jersey The 1970s band Three Dog Night proclaimed that “One is the loneliest number that you’ll ever do.” For all… Read More »
Tips & tricks for standing up
A common household material keeps my feet from slipping by Bill Maclean, Blue Bell, Pennsylvania As FSHD progresses, many find that standing up becomes more difficult. As a result, one… Read More »
Distended belly with FSHD: A surgical reconstruction
…and perhaps refinements yet to be discovered. A first step. by Rick Whitehead, Knoxville, Tennessee I promoted using a double compression abdominal belt for years but was always looking for… Read More »
Marijuana and CBD
The Young Adults Zoom group hosted a session last night (March 18) with guests Claire Szabo-Casella and Lou Casella. They shared their experiences using cannabis-based products to address a variety… Read More »