As we look back on the incredible year we have had, we want to acknowledge those who have shared their inspirational stories, strength and commitment to continue to do the… Read More »
Looking Back on A Year Full of Strength
Living with FSHD: Katy Kat in the Hat (Video)
Ellen Feldman, filmmaker, created this documentary about a woman she met who has FSH muscular dystrophy. “Katy Kat in the Hat is a story about a woman who defies all… Read More »
We Want You to #ShareYourVictory!
At this year’s Inaugural CureFSHD National Gala on November 11, we look to celebrate not just the victories of our tireless researchers and fearless ambassadors, but also the small (yet… Read More »
Carden and Spencer Wyckoff to Set off on Piggyback Adventure through the Appalachian Trail
FSH Society Ambassador Carden Wyckoff and her brother Spencer are at it again! This time, they will be traveling 79-miles through the Georgia portion of the Appalachian Trail to raise… Read More »
Q&A with Dr. Rabi Tawil, Part 2
This is a continuation of our Q&A session with Rabi Tawil, MD, co-director of the MDA Neuromuscular Disease Clinic at the University of Rochester, New York, and lead author of… Read More »