Our May Women on Wellness group discussion focused on a topic that is always a big concern, fatigue. This is a group of women who meet monthly on Zoom and… Read More »
Managing Fatigue
Raising our voice to raise our seats!
Medicare will now cover elevating power wheelchair seats by Ranae Beeker, RN Margaret Mead opined: “Never doubt that a small group of thoughtful, committed individuals can change the world. In fact, it’s… Read More »
An Unforgettable Experience at Leicester City’s Disability Matters Matchday
The city’s famed football club engages, inspires, and empowers this FSHD family Last month, father and daughter Michael and Alexa Penwell had an incredible experience in Leicester City, England. They… Read More »
What to do in a crisis
Mental health crises are prevalent in our community. Help is out there A diagnosis of FSHD poses life-long challenges. Individuals live with an undercurrent of anxiety about how their symptoms… Read More »
Feeling Fit: Exercising your hands and arms
Textbook descriptions of FSH muscular dystrophy focus on weakness in biceps and shoulder blades, but many individuals also experience weakness that affects their hands, wrists, and forearms. In our March… Read More »