Know the difference by Amanda Hill, FSHD Society In your journey with FSHD, you’ve probably heard about the importance of seeing your doctor regularly. You also most likely have heard… Read More »
Clinical care vs. clinical research
Treatments for FSHD: A broader view
There are already many effective interventions by Nicol Voermans, MD PhD, Radboud University Medical Center We hear that currently there is “no cure for FSHD,” but this does not mean… Read More »
Kitchen Confidential
Tips and tricks from our Women on Wellness Zoom group’s October meeting on Adaptive Cooking and Adaptive Eating. Notes by Helen Cave and Ranae Beeker, RN. One member has reorganized… Read More »
Step by step. Inch by inch
I have never met most of you, but you are all my village by Brian Jude Loiacono When I reflect back on my life playing all kinds of sports in… Read More »
When I finally discovered the benefits of support groups
Sharing with fellow MD patients is a chance to learn and impart what we know by Robin Stemple. Reprinted with permission from Muscular Dystrophy News Today. I’ll admit that I… Read More »