When we invited people in the community to offer “exercise hacks,” one of those who stepped forward was Rita Lynn. Following her FSHD diagnosis, she went through a period of… Read More »
Holistic approaches to fitness and wellbeing
In Memory of William G. Michael
FSHD Society co-founder knew the stakes were high to get things right by Daniel Paul Perez, co-founder FSHD Society William G. “Bill” Michael passed peacefully at the age of 82… Read More »
An ounce of prevention…
September is Fall Prevention Awareness Month and was the subject of our Wellness Hour. Falls are the second most common cause of injury leading to death. For a person with… Read More »
Eye Care Tips and Tricks for FSHD
by Helen Cave and the Women on Wellness group Dry eyes, also known as Ocular Surface Disease (OSD), is a common issue with many in the FSHD community. Symptoms are… Read More »
Challenging the narrative: new film stars actor with FSHD
Good Bad Things is unlike any film you’ve ever seen by Erin Saxon, FSHD Society Good Bad Things is almost here! Last August, we shared updates on the project, and… Read More »