Our blog series of Q&As with physical therapist Julie Hershberg contain so many useful tips that we thought it would be helpful to index them all in one place. Bookmark… Read More »
Ask the Physical Therapist series
Bay Area FSHD Family Day Conference Videos and Slides
We are pleased to share slides and videos from our conference held in San Francisco on July 15, 2017. Thank you to our wonderful speakers and to our sponsor Acceleron… Read More »
Ohio FSHD Family Day Conference
Strengthening our network in the Midwest The FSHD Family Day Conference, hosted by Nationwide Children’s Hospital and the FSH Society on June 11, 2017, drew about 70 patients, families, researchers,… Read More »
Our new Physical Therapy brochure
Hot off the press, here’s our updated Physical Therapy brochure! Co-written by leading FSHD experts Katy Eichinger, PhD, Shree Pandya, PT, DPT, MS, and Wendy King, PT, the brochure provides… Read More »
Muscle Activation Exercises
Lynnette Rasmussen OTRL provides detailed, hands-on demonstrations of a variety of gentle exercises targeting specific muscles. Developed in collaboration with an FSH muscular dystrophy patient, these exercises demonstrate principles that… Read More »