Over the weekend, supporters of the FSH Society Dr. Michael Kyba of the University of Minnesota and patient Marge Brchan shared their amazing story with Leah Beno of FOX 9… Read More »
FSH Society Supporters Dr. Michael Kyba and Marge Brchan Share Their Story With FOX 9 Minneapolis
Carden and Spencer Wyckoff Share Their Appalachian Adventure with WSB-TV Atlanta!
Last month, FSH Society Ambassadors Carden and Spencer Wyckoff hiked through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. You can now watch… Read More »
New FSHD biotech launched with $55 million
From BusinessWire CAMBRIDGE, Mass.–(BUSINESS WIRE)–Third Rock Ventures, LLC today announced the launch of Fulcrum Therapeutics, a company focused on unlocking gene control mechanisms to develop small molecule therapies. Fulcrum will… Read More »
Washington Post features FSH muscular dystrophy story
Today’s Washington Post featured a report on work by a research team that was described in an FSH Society press release. The Post story, “How CRISPR could lead to a cure for… Read More »
Doug & Gracie on Philadlephia’s Fox29 News!!
This just in from Doug Craig’s Facebook page! We were walking down Market Street in Philly and came upon the Fox 29 station. We decided to pitch our story, and… Read More »