The Huffington Post hosted a live discussion around the 25th anniversary of the Americans With Disabilities Act. Our very own Kristin Duquette, a decorated athlete and activist, participated in the… Read More »
Kristin Duquette speaks about the 25th Anniversary of the Americans with Disabilities Act with Huffington Post Live
First-Ever FSHD Evidence-based Care Guideline Published by the American Academy of Neurology
From PRWeb Contact Information: Rosie Hale 617-779-1893 FSHSociety@shiftcomm.com Guideline is a landmark step forward for the diagnosis; comes as a result of FSH Society’s advocacy efforts over the past 20… Read More »
Good Morning America spotlights FSHD
Carlos Romero, an FSH Society member, was featured today on Good Morning America in connection with People magazine’s annual “Half their Size” issue, which is out on news stands today. While… Read More »
GE Chairman’s Award Benefits FSH Muscular Dystrophy Research
When GE Aviation’s Vice President Mohammad Ehteshami was told that he had received the prestigious GE Chairman’s Award, he asked that the $25,000 be donated to the FSH Society, a… Read More »
The Centers for Disease Control Spotlights FSH Muscular Dystrophy
Boston, MA / February 11, 2013 At the age of 28, Kevin Kirby was diagnosed with a disease that most people have never heard of. Called Facioscapulohumeral Muscular Dystrophy, or… Read More »