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Carlos Romero, an FSH Society member, was featured today on Good Morning America in connection with People magazine’s annual “Half their Size” issue, which is out on news stands today. While… Read More »
Good Morning America spotlights FSHD
GE Chairman’s Award Benefits FSH Muscular Dystrophy Research
When GE Aviation’s Vice President Mohammad Ehteshami was told that he had received the prestigious GE Chairman’s Award, he asked that the $25,000 be donated to the FSH Society, a… Read More »
The Centers for Disease Control Spotlights FSH Muscular Dystrophy
Boston, MA / February 11, 2013 At the age of 28, Kevin Kirby was diagnosed with a disease that most people have never heard of. Called Facioscapulohumeral Muscular Dystrophy, or… Read More »
The FSH Society Answers Questions About the New Gene for FSH Muscular Dystrophy
Boston, MA / January 24, 2013 Facioscapulohumeral muscular dystrophy (FSHD) is a disease most people have never heard of, even though it is one of the most common forms of… Read More »
Progress in FSHD Muscular Dystrophy Research Hailed at International Meeting
San Francisco, CA / November 08, 2012 Just two decades ago, the scientific world largely ignored a mysterious disease that causes muscles to weaken throughout the body. Called fascioscapulohumeral muscular… Read More »