We’re now the FSHD Society Discerning readers will notice that we have changed our name and logo to align with how the rest of the world abbreviates facioscapulohumeral muscular dystrophy…. Read More »
What’s in a name?
Radio show: Meet Heather Green, forensic psychologist
Join radio host Tim Hollenback via Facebook Live on Thursday, August 29, at 9:00 PM EST for a conversation with the fascinating Heather Green. You can read her story here…. Read More »
USA Today features Carden Wyckoff
Those of us who spend (too much) time on Facebook may recall the envy-inducing photos posted last summer by Carden Wyckoff as she traveled solo with her wheelchair across Europe…. Read More »
Our next radio guest is Alan Brown of NFL Films
We’re excited to welcome Alan Brown of Holicong, Pennsylvania, as our guest on FSH Society Radio on July 31 at 9PM EST. Alan is the director of business development at… Read More »
International FSHD Patient Advocacy Summit
Marseille meeting convenes delegates from 11 nations BY SHEILA HAWKINS, TRUSTEE, MUSCULAR DYSTROPHY UK FSH muscular dystrophy affects people of every nation and ethnicity, and the effort to develop treatments… Read More »