Welcome to the British Columbia Chapter!
Thank you for visiting the British Columbia Chapter!
We are here to build a local community of patients, family, and friends, and to help them connect and advocate for themselves and each other. Our hope for the future is to find a cure - until then, we hope to bring greater awareness to the community and to help improve the quality of life for all those affected.
We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email BCChapter@FSHDSociety.Org.
You can also sign up for our email, follow us on Facebook, or join in the conversation on our private Facebook group.
FSHD Canada Foundation has partnered with the FSHD Society to support and grow the FSHD communities across Canada with the shared goal to deliver treatments and a cure for FSHD Muscular Dystrophy.
BC Chapter - 2024 World FSHD Day Celebration
It was SO lovely to see so many of you come out to celebrate World FSHD Day. We want to thank all the first timers for making the effort to join in the festivities. And of course, big thanks to all the familiar faces for attending. Wonderful to have such a great turn out!
We were treated to an update from Solve FSHD’s Executive Director, Eva Chin, on all the latest news in the areas of research and development. Exciting to hear about everything that is in the pipeline!
A big thanks to the FSHD Society and Solve FSHD for co-sponsoring this evening filled with food, fun, and fellowship!
Upcoming Events
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Cheryl Hooge
Chapter Co-Director
Hello! My name is Cheryl, and I am so glad you found us! I am excited to co-direct the FSHD BC Chapter!
My daughter was diagnosed with a spontaneous case of FSHD at the age of 16. I am always trying to learn as much as I can from literature and from other people living with the disease, on how to cope and to keep up with research.
The FSHD community is an awesome resource for patients, family members, caregivers and so many others. It is this value that I hold in community that has inspired me to build our community closer to home, and to be able to provide support and friendship with local FSH-ers. It is also a very crucial time because as treatments are being developed, we need clinical trial sites. We would love to have one here!
We are looking forward to meeting you!
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
