Welcome to the Chicagoland Chapter!

Thank you for visiting the Chicagoland Chapter! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

To reach us, please email: ChicagoChapter@fshdsociety.org

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Mary and Suzy

Mary Mauch and Suzy Kosten

Chapter Directors

Hello my name is Mary Mauch and I am extremely honored to be one of the new co-directors of the Chicagoland chapter along side my sister Suzanne Kosten.

I was officially diagnosed with FSHD in 2018. My mother and brother also have FSHD type 1.

Hello my name is Suzanne, but most friends and family know me as Suzy. With my mom, two siblings, and one of my five children diagnosed with FSHD, I feel this is an important role to take on.

We are looking forward to serving our Chicagoland community and seeing where the future takes us.

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