Welcome to the Colorado Chapter!
Thank you for visiting the Colorado Chapter of the FSHD Society!
We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email: ColoradoChapter@fshsociety.org.
Don’t forget to follow us on FACEBOOK!
2024 Colorado Walk & Roll to Cure FSHD
Our 2024 annual Walk & Roll to Cure FSHD was an amazing success this year! Thank you to everyone who participated in helping raise awareness and funds toward reaching our goal of finding treatments and a cure for FSH Muscular Dystrophy. Fundraising will continue through the end of the year.
Learn more about the Walk & Roll to Cure FSHD here.
Stay tuned as we begin planning for our 2025 Walk & Roll to Cure FSHD!
The 2023 Colorado Walk & Roll to Cure FSHD
Our 8TH ANNUAL Colorado Walk & Roll to Cure FSHD was an amazing success! Stay tuned as we begin planning for our 2024 Walk & Roll to Cure FSHD.
Learn more about the 2023 Walk & Roll to Cure FSHD HERE!
Upcoming Events
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Kurt Spiegel
Chapter Director
I was officially diagnosed with FSHD at 53 as my muscle atrophy and unexplained weakness sent me searching for a cause. Coming from an endurance athlete lifestyle, the progression of the disease significantly impacted all aspects of my physical activities.
No longer able to work, I’m looking to work closely with the FSHD Society to provide education, insights, and advice to FSHD patients and caregivers so that we can live the best life possible.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
