Welcome to the Columbus Chapter!
Thank you for visiting the Columbus Chapter of the FSHD Society, established July 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email ColumbusChapter@FSHDSociety.org or contact your Eastern Regional Director at jenny.gast@hshdsociety.org
To contact the Columbus Chapter Director, Heather Kalista: ColumbusChapter@FSHDSociety.org
Please visit us on Facebook for updates
Our Chapter in Pictures!
Upcoming Events
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Heather Kalista
Chapter Director
I’m Heather Kalista from Westerville, Ohio. When FSHD became a reality for my family in 2016, we turned to the FSHD Society for information and resources. I am grateful for the connections we've made during this journey and hope to be a source of information and support for others in our community as we collectively work toward a treatment followed by a cure.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
