Welcome to the Dakotas Chapter!
Thank you for visiting the Dakotas Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email: DakotasChapter@fshdsociety.org
Follow our local chapter on Facebook for news and notes about regional happenings. And please become an official member of our chapter to ensure you never miss a thing! Simply fill out the form in the right sidebar.
2024 Walk & Roll to Cure FSHD
Our 2024 annual Walk & Roll to Cure FSHD was an amazing success this year! Thank you to everyone who participated in helping raise awareness and funds toward reaching our goal of finding treatments and a cure for FSH Muscular Dystrophy. Fundraising will continue through the end of the year.
Learn more about the Walk & Roll to Cure FSHD here.
Stay tuned as we begin planning for our 2025 Walk & Roll to Cure FSHD!
Dakotas Chapter Meeting
Join our chapter for a special community lunch event on Saturday, August 24th. At this lunch, we will have staff from the FSHD Society with us to share updates from the 2024 Patient Connect Conference, get people excited for the Walk & Roll, and give us the chance to connect with each other over yummy food. This event is free with lunch provided by the FSHD Society. Please RSVP using the below button for an accurate head count. We hope to see you there!
Exact location will be shared closer to the event date.
Join us for a Dakotas Chapter Meeting on Saturday, May 11!
10:30 am – 11:30 am CT
WHERE: 3247 47th St S, Fargo, ND 58104
DETAILS: Join us for a Dakotas Chapter Meeting where we will have the opportunity to connect and share updates with the community. This meeting will be held in person.
Thank you for supporting the Walk & Roll in 2022!
A huge THANK YOU to everyone who walked, rolled, donated, and showed up on Saturday, Sept. 17th in Urban Plains Park in Fargo, North Dakota! We are thrilled to announce that we raised over $20,000!!!
Want to know more about the Walk & Roll? Learn More
Upcoming Events
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Bryan Domholt
Chapter Director
I'm Bryan Domholt and I look forward to forming the Dakotas Chapter of the FSHD Society.
My goal with this chapter is to allow people and families affected by FSHD to have someone to talk to and share ideas of some ways to better deal with FSHD. By having a local support group, we will be able to bring more awareness to area communities and help with fundraising efforts.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
