Welcome to the Idaho Chapter!
Founded by Minette Hale in January 2020, the goals of the Chapter Program here in the Idaho area are to:
- Increase awareness and educate families throughout Idaho.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSHD.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Please join our chapter via the "Stay informed on Local Activities" form on the right. We'll make sure you receive updates about future events and plans!
Please visit our Facebook page! @FSHD-Society-Idaho
2024 Idaho/Intermountain Walk & Roll to Cure FSHD
Our 2024 annual Walk & Roll to Cure FSHD was an amazing success this year! Thank you to everyone who participated in helping raise awareness and funds toward reaching our goal of finding treatments and a cure for FSH Muscular Dystrophy. Fundraising will continue through the end of the year.
Learn more about the Walk & Roll to Cure FSHD here.
Stay tuned as we begin planning for our 2025 Walk & Roll to Cure FSHD!
The 2023 Intermountain Walk & Roll to Cure FSHD!
Our 2023 annual Intermountain Walk & Roll to Cure FSHD was an amazing success this year! Thank you to everyone who participated and helped raise awareness and funds towards reaching our goal of a cure by 2025. Fundraising will continue through the end of the year.
Learn more about the 2023 Walk & Roll to Cure FSHD HERE!
Stay tuned as we begin planning for our 2024 Walk & Roll to Cure FSHD. If you would like to volunteer to support the 2024 Walk & Roll, please contact your local chapter director or walk leader.
Idaho Chapter Walk Celebration
Saturday, September 23, 2023 | 12:00 pm - 2:00 pm MT
- Register to Walk & Roll, fundraise, and come join us in person for BBQ, fun, and connection with the FSHD Community.
- Participate in the Walk & Roll virtually if you’re not comfortable committing to an in-person gathering. Everyone who registers has access to great online fundraising tools, then you can walk or roll whenever and wherever best suits you!
- Come celebrate and support our walkers/rollers/fundraisers and enjoy a great BBQ!
Regardless of registration/fundraising status for the Walk & Roll, everyone is invited to the Idaho Walk & Roll Celebration. (If you are registered for the Walk & Roll and entered an ID address, you are already "RSVP'd" for the BBQ in the park.)
Thank You for joining us for
Idaho Talent Fest 2023!
Re-watch this year's show and stay tuned for more information about 2024.
Volunteer Spotlight: Minette Hale
Hear from your local Chapter Director, Minette Hale, about her journey with FSHD, how she found her place at the FSHD Society, and her advice for folks thinking about getting more involved.
Upcoming Events
- There were no results found.
- There were no results found.
Meet Your Chapter Director
Minette Hale
Minette comes from a strong family line of FSH Muscular Dystrophy. She and 6 of her 8 siblings have inherited the disorder from her father and grandmother. It has been a huge part of not only her life, but her immediate and extended family as well. Having people in her life who can relate to her struggles has been a strength. She hopes, as a chapter director, to help others feel support from their FSHD family as we are all brothers and sisters in this disease.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
