Welcome to the Los Angeles Chapter!
Thank you for visiting the Los Angeles Chapter of the FSHD Society which officially launched in August 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Upcoming Events
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James Rice
Chapter Director
I'm James Rice and I was born and raised in Southern California in Orange County. I was diagnosed with FSHD via genetic testing when I was 19 as a freshman at Michigan State University. I moved to Los Angeles in 2015 to start a career in Civil Engineering. Outside of my career, I like being outdoors as much as I can, bodyboarding, playing video games, music, and volunteering. I'm grateful to have the opportunity to be the FSHD Society Chapter Director in Los Angeles. I look forward to working with everyone as we work towards a treatment for this condition.
Stay Informed on Chapter Activities
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of your local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
