Welcome to the Michigan Chapter!
Thank you for visiting the Michigan Chapter of the FSHD Society which launched in early 2023. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email: MichiganChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the Michigan chapter
2024 Michigan Walk & Roll to Cure FSHD
Our 2024 annual Walk & Roll to Cure FSHD was an amazing success this year! Thank you to everyone who participated in helping raise awareness and funds toward reaching our goal of finding treatments and a cure for FSH Muscular Dystrophy. Fundraising will continue through the end of the year.
Learn more about the Walk & Roll to Cure FSHD here.
Stay tuned as we begin planning for our 2025 Walk & Roll to Cure FSHD!
Walk & Roll to Cure FSHD 2023
Our 2023 annual Michigan Walk & Roll to Cure FSHD was an amazing success this year! Thank you to everyone who participated and helped raise awareness and funds towards reaching our goal of a cure by 2025. Fundraising will continue through the end of the year.
Stay tuned as we begin planning for our 2024 Walk & Roll to Cure FSHD. If you would like to volunteer to support the 2024 Walk & Roll, please contact your local chapter director or walk leader.
Upcoming Events
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Cassie Harris
Chapter Director
My FSHD journey began in 2021 when my son was clinically diagnosed. The more I learned the more I wondered about myself, as well as my father, having it as well. For just over a decade I had battled with doctor after doctor trying to figure out what was going on with my body. FINALLY I had an answer! However with all three of us facing this disease I also had fear, confusion and many other emotions running through me. I looked to the FSHD Society for information, and a community to help my family understand and navigate it all.
I reside in Saranac, MI. I live with my husband of 20 years and our two teenage children. We enjoy spending time together playing games and going on family trips. I am exited to begin this chapter and for us to build a community to learn with, lean on and navigate this disease together!
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
