Welcome to the North Carolina Chapter!
Thank you for visiting the North Carolina Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
For general chapter questions or to inquire about volunteer opportunities, please email Michael King, North Carolina Chapter Director, at NCChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Want to make sure you never miss information about activities with the chapter? Become a member by filling out the form on the right.
2024 North Carolina Walk & Roll to Cure FSHD
Our 2024 annual Walk & Roll to Cure FSHD was an amazing success this year! Thank you to everyone who participated in helping raise awareness and funds toward reaching our goal of finding treatments and a cure for FSH Muscular Dystrophy. Fundraising will continue through the end of the year.
Learn more about the Walk & Roll to Cure FSHD here.
Stay tuned as we begin planning for our 2025 Walk & Roll to Cure FSHD!
Upcoming Events
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United States7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our... Read More »
Michael King, Chapter Director
Hi! I am Michael King from Charlotte, North Carolina. After I was diagnosed with FSHD in early 2024, I immediately reached out to the amazing team at the FSHD Society and will forever be grateful for their help navigating this disease. I have found that connecting with fellow patients and being active in the FSHD community has been the best therapy for me as I face the challenges of this disease. I hope that by serving in the role of Chapter Director that I can positively impact all FSHD patients, their families, and friends. I feel blessed to have this opportunity and am excited to get to know all of you.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know if you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
