Welcome to the North Texas Chapter!
Thank you for visiting the North Texas Chapter (formerly known as the Dallas Chapter) of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email: NorthTexasChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please become an official member of our chapter and never miss a thing! Simply fill out the form in the right sidebar.
Special All Texas Chapter Meeting on ADA Accessibility in Public Spaces
Thank you to everyone who attended our April 24th Chapter Meeting where we were joined by ADA Specialist, Attorney Brandon A. Rotbart, P.A.
During the meeting, Mr. Rotbart discussed ADA Compliance in public spaces, and provided examples of what to look out for as members of the community. Please click here to watch the recording or here for general notes.
Upcoming Events
North Texas Virtual Chapter Meeting
Zoom Virtual Meeting , United States8:00pm ET | 7:00pm CT | 6:00pm MT | 5:00pm PT North Texas Virtual Chapter Meeting, 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a... Read More »
Glen Denehie
Chapter Director
My name is Glen Denehie and I am the Chapter Director for the North Texas Chapter.
The cornerstones for our North Texas Chapter are : Community, Hope, Healing, Awareness
We believe there is power in these cornerstones and these cornerstones will provide a safe and solid place for impacted individuals to get help as well as have the opportunity to help others as we take this journey together.
I have been married to my amazing wife, Beth, for 27 years. We have two teenage sons who make our circus complete.
Though I call Dallas home now, I grew up in South Mississippi and Louisiana. I completed my undergraduate studies at the University of Louisiana- Lafayette and graduate studies at the University of Dallas.
Tara Hill
Chapter Director
A transplant from Missouri, Tara has been in Texas for 13 years. She contacted FSHD Society in 2022 and began helping Glen Denehie launch the North Texas Chapter.
"When I was diagnosed in 2000, there was virtually nothing for patients and their families. Now I have a chance to reach out to others who are on their own journey with FSHD and offer them community and hope."
Tara lives in North Texas with her spouse and enjoys gardening, music and reading.
Stay Informed on Chapter Activities
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of your local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
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