Welcome to the Sacramento Chapter!

Thank you for visiting the Sacramento Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

To contact us directly, please email:
SacramentoChapter@fshdsociety.org

Don’t forget to follow us on FACEBOOK

Would you like to get involved? Simply fill out the form in the sidebar. We are looking for a new chapter leader or leadership committee. Please consider joining us!

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Paul Miller

Paul Miller

Chapter Director

At the age of 16 I was diagnosed with FSHD. I am now 62. Throughout my life I have stayed positive and found many ways to cope with my condition. Currently I use a power wheelchair for outside activities and a wheeled walker around the house. My current passion is photography.

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Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of your local chapter and you'll never miss a meeting or event notice.

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