Welcome to the Southwest Florida Chapter!
Thank you for visiting the Southwest Florida Chapter of the FSHD Society. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
We are actively seeking someone to lead this very important chapter. If you are interested in this role or have general chapter questions, please email SWFloridaChapter@fshsociety.org or Jenny Gast, Eastern Regional Director, at jenny.gast@fshdsociety.org
2024 Walk & Roll to Cure FSHD
Our 2024 annual Walk & Roll to Cure FSHD was an amazing success this year! Thank you to everyone who participated in helping raise awareness and funds toward reaching our goal of finding treatments and a cure for FSH Muscular Dystrophy. Fundraising will continue through the end of the year.
Learn more about the Walk & Roll to Cure FSHD here.
Stay tuned as we begin planning for our 2025 Walk & Roll to Cure FSHD!
Volunteer Spotlight: Heloise Hoffmann
Hear from Heloise Hoffmann, about her journey with FSHD, how she got involved with the FSHD Society, and why she's hopeful for the future.
Upcoming Events
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Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know if you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
