Held every two years, FSHD Connect is the world’s biggest networking event for FSHD, bringing together hundreds of individuals and families living with FSH muscular dystrophy, clinicians, and researchers for two days of immersive learning and workshops. Attendees find out about the latest research, drug developments, and clinical trials, as well as a wealth of news you can use, from managing symptoms to navigating the challenges of daily life, meeting and learning from the greatest experts-other patients and families like yours!
Check out the 2024 FSHD Connect Draft Agenda
Check out fun activities while you are in Denver, curated by our Colorado chapter
Learn more and spread the word! Download: 2024 Connect Flyer