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Event Series:
Early-Onset Parent Roundtable
Aug 20 @ 8:00 pm - 9:00 pm
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT
Using real FSHD patient food records, we will explore the journey to better nutrition for FSHD and discuss the dietary choices that we make each day. Selina Lai, our Pacific Northwest Chapter director, has a registered dietitian credential and has practiced in nutrition for physical fitness and weight management for seniors and young children. She has been learning about the nutrition needs of FSHD patients, as several of her family members have FSHD.
Join us for our monthly Parents’ Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible, and to advocate for more research and clinical trials for children. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.
We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.
Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. You may change your group membership at any time by emailing us at info@fshdsociety.org.
Ally Roets & Sam Ray
Early-Onset Chapter Directors
Learn more about the Early-Onset Chapter
