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Dec 28, 2023 @ 9:00 am
Thursday, December 28th
On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.
In this episode, join Tim as we wrap up the year with a discussion on the future of FSHD treatment and advocacy. Guest Ken Kahtava, Chief Business Officer at the FSHD Society, delves into Project Mercury, a groundbreaking initiative aiming to revolutionize access to therapies, improve clinical trials, and engage the FSHD community globally. From disease progression modeling to the collective power of global patient registries, this episode highlights the innovative strategies paving the way for a hopeful future in FSHD treatment.
A new video podcast is released the 4th Thursday of every month on YouTube and Facebook. Share your thoughts, or post questions in the comments section. You can also listen to the episode on your favorite podcast app. Subscribe on YouTube or your podcast app to make sure you never miss an episode!
