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Aug 29 @ 1:00 pm - 2:00 pm
19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT
BetterLife FSHD
We are thrilled to announce the premiere of BetterLife FSHD, an innovative health platform dedicated to helping you take control of your well-being and advance FSHD research. With BetterLife FSHD, you can track your symptoms, access personalized resources tailored to your needs, and be matched to clinical trials and other research studies. In this session, Amanda Hill, Director of Clinical Research at the FSHD Society, will provide a live demonstration of BetterLife FSHD and share how your experiences and health data can drive us toward treatments and a cure faster than ever before. Are you ready to take control of your FSHD story?
