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Sep 19 @ 1:00 pm - 2:00 pm
19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT
Insurance Coverage for Costly Rare-Disease Treatments
As FSHD is entering the era of new therapies, Kelly Maynard, President and Founder and Amy Aikins, Director of Patient Access from the Little Hercules Foundation, will give a presentation on health insurance. This presentation will include an overview of the types of insurance, how the coverage process works and appeals and grievances.
For the past several years, the Little Hercules team has been providing direct support to patients and families who need assistance with their insurance appeals for approved treatments for Duchenne Muscular Dystrophy. In addition to the direct support they provide, their team advocates for the entire rare disease community on key issues such as drug approvals, legislative priorities surrounding timely treatment access, and engaging with the government programs that many rare disease patients rely on. They are committed to working to ensure every rare disease patient gets access to the treatments and care they need and deserve. This commitment includes working with other patient advocacy organizations, such as the FSHD Society, to provide support surrounding treatment access.
