- This event has passed.
Nov 2 @ 11:00 am - 4:00 pm
Co-hosted by the UMass Wellstone Center for FSHD and the FSHD Society
FSHD research and drug development is in a new era. Do you know what’s happening and how this might impact your life? Here’s your chance to hear from the research and advocacy leaders in New England, as well as from biopharmaceutical companies that are working on FSHD therapies. Get answers to your questions about your health, maintaining optimal function through physical therapy, exercise, assistive devices, and more. Don’t miss out on the opportunity to meet patients and families and network with FSHD Society leaders and activists in our community!
The day begins with a pre-conference science talk and lab tour. Here’s the final agenda.
There will also be an opportunity for individuals to donate a blood sample for a biomarker study. Scroll down for more information. If interested, please contact Dr. Douthwright in advance so we can plan accordingly.
Lunch will be served. The venue is wheelchair accessible. Free event parking in the adjacent Employee Parking Garage (entry from South Road near Plantation Street (see CAMPUS MAP).
Date and location
Saturday, November 2 , 2024
Doors open: 10:00; Lab tour: 11:00; Conference: noon-4:00 PM
University of Massachusetts Chan Medical Center
New Education and Research Building, Room N1-1400
366 Plantation St, Worcester, MA 01605
Deadline to register is October 28
PARTICIPATE IN RESEARCH!
During the event, there will be an opportunity in the afternoon for meeting attendees to contribute to an ongoing FSHD plasma biomarker study being conducted by the UMass Wellstone Program. Dr. Charlie Emerson’s lab is analyzing plasma from FSHD and controls to identify novel biomarkers that might accelerate future FSHD clinical trials. This will involve reviewing a consent form with our staff and being willing to contribute a blood sample (2 tubes, which is 2-3 teaspoons of blood). Patients, spouses, and family members can contact Catherine Douthwright to find out more information ahead of the meeting and to review the consent form.
Catherine Douthwright, PhD, CCRP
Phone: (508) 856-1524
Catherine.Douthwright@umassmed.edu
Download the study brochure here: FSHD Biomarker Study details.
