Jan 21 @ 8:00 pm - 9:00 pm
Event Series
(See All)
Parents’ Roundtable
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT
Heloise Hoffmann, now a student at Stanford University, explains the science of FSHD to your kids (and you) in easy-to-understand terms. She’ll answer your questions and discuss the new treatments that are being developed, including some exciting ideas she’s working on with a team of fellow students. If you haven’t met her before, she is simply awesome. We have followed Heloise’s journey since her diagnosis with FSHD at age 13. She is going to change the world!
Join us for our monthly Parents’ Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible, and to advocate for more research and clinical trials for children. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.
We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.
Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. You may change your group membership at any time by emailing us at info@fshdsociety.org.
Ally Roets & Sam Ray
Parents’ Roundtable Directors
Learn more about the Parents’ Roundtable
