Women On Wellness

First Wednesday of every month
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT

We will open 30 minutes earlier than the official start time, for an open forum to chat, get to know each other better, share amongst the great collective of women who participate.

This is our mutual support and social group for women of all ages who are living with FSHD. We created this women-only space to discuss health, self-care, and any other topics that we find easier to discuss with other females. Our group is hosted and facilitated by a group of volunteers. We may suggest articles and conversation-starters to get each meeting going, but this is truly your space to share what’s on your mind.

Special thanks to Ranae Beeker, RN, who has facilitated this group since its founding. About Ranae, Ora Prilleltensky writes: “Ranae solicits topics for discussion; sends polls to gather information on what is most interesting and relevant; researches topics and sometimes solicits guest speakers; sends articles and follow-up emails; and takes notes which she later shares with the group. I’m sure that she does even more behind-the-scenes work related to the smooth functioning of this group.”

Please register below and we will send out reminders with the Zoom link on the day of each monthly gathering. This is a Zoom meeting and we prefer not to share the link on a public website (to discourage Zoom bombers).