Young Adults

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT

FSHD Young Adults is a social and support group focused on encouraging and empowering young adults impacted by FSHD. We created this space specifically for younger FSHDers to connect, collaborate, and provide networking opportunities. Whether you’re just graduating, starting a new position, or already on a career track, the FSHD Young Professionals group will help you develop a valuable network of friends facing similar challenges.

Our group is hosted and facilitated by volunteers who are excited to connect with you. We meet once a month via Zoom. Mark your calendar for the third Monday at 8pm ET/5pm PT. Once you join the group, no need to register again; you will be sent regular reminders and the Zoom link.

You can also join the conversation on Discord.

To contact us directly, please email: youngprofessionals@fshdsociety.org.