There is good evidence that exercise can help slow and even reverse the loss of function caused by FSHD. Exercise is also essential for your overall fitness and health. While exercise probably does not reverse the disease process itself, it helps strengthen muscles that are still healthy. A physical or occupational therapist can guide you in figuring out targeted exercises, stretches, etc. to support the healthy muscles and develop ways of moving and carrying out daily functions that avoid causing muscle strain and pain. There is no one-size-fits-all solution, however. It takes research, persistence, and creativity to find a regimen that works for you and your body.
Resources
- Physical Therapy and Exercise for FSHD (pdf) was written by leading experts to help you and your physical therapist work as a team.
- Feeling Fit with FSHD Zooms meet twice a month on the 2nd and 4th Thursdays at noon. Register to get the link.
- Frank Hanley's Tai Chi resource page.
Scroll down to browse our videos and articles on Physical Therapy and Exercise.
Physical therapy and exercise blog posts
How postural changes lead to pain
“I’m focused on getting posture right and core as active as possible.” – Ulrike Uta At this month’s Feeling Fit with FSHD sessions, physiotherapist Ulrike Uta, MSc, MCSP, of the… Read More »
Feeling Fit with Lonwabo Nene
Disclaimer: Information provided by the FSHD Society does not imply an endorsement of any of the drugs, procedures, treatments, or products discussed. Please consult your own healthcare provider about any… Read More »
Feeling Fit with low-impact seated exercises
Disclaimer: Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider. This week’s leader, known by her Instagram… Read More »
Feeling Fit: Exercises for the neck and shoulders
Disclaimer: Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider. If anything hurts, stop! In the November… Read More »
Abdominal and breathing exercises for FSHD
Disclaimer: Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider. We’re excited to launch Feeling Fit with… Read More »
Women on Wellness (monthly Zoom)
By popular demand, we are launching our Women on Wellness Zoom support group starting on Wednesday, October 6. This meeting will take place on the first Wednesday of each month… Read More »