5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month's Wellness hour features In Home Preferred, an innovative company run and managed by two Occupational Therapists who are Certified Aging in Place Specialists (CAPS). Hailey Conway, OTR,OTD,MS, CAPS and Sam Koelmel, OTR, OTD, MS, CAPS are the owners... Read More »
In this episode of FSHD Straight Talk, host Tim Hollenback talks with George Pollock, longtime member of the FSHD Society Board of Directors and a powerful advocate FSHD treatments. Join Tim and George for a conversation about the healing power of movement and to hear more about George’s passion for endurance athletics and upcoming participation... Read More »
First Wednesday of every month* 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT *Note we have changed the date to July 10 due to the July 4 holiday. Our July topic will be: How to manage when our assistive devices cannot get us into a building, how to... Read More »
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT In PART 3 of the “Feeling Fit” Breathing and Breathwork sessions, Frank Hanley will review and discuss exercises presented in the first two workshops, and demonstrate additional breathwork exercises to improve breathing... Read More »
8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT This month, we invite everyone in the Young Adults community to join a conversation about how we build our community. How can this group support you with issues that are priorities in your life? What can we all work on... Read More »
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT This year's FSHD Connect, held on June 15-16, had activities and breakouts dedicated to pediatric and early-onset FSHD. Ally Roets and Debbie Eggleston will share what happened, what was learned, and discuss how our community will follow up. Join us... Read More »
19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT rpt The foods you eat impact your disease and can support improved muscle function in combination with supplementation and exercise. Using real FSHD patient food records, we will explore the journey to better nutrition... Read More »
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Our featured presenter, Andrea Jaworek, PT, is passionate about aquatic exercise for people with neuromuscular conditions. Andrea will be presenting on aquatic exercise, discussing the benefits and latest research, the aquatic precautions/contraindications,... Read More »
7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Team Captain Rally & Social Hour Wednesday, July 31st Join us for our annual Team Captain Rally where we celebrate our amazing Team Captains and Walk Leaders for all of the incredible work that they do. We’ll provide a few tips and tricks for... Read More »
