Event Series 2025 Chapter Meetings

Western PA Virtual Chapter Meeting

Zoom Virtual Meeting , United States

Western PA Virtual Chapter Meeting Monday, April 21, 2025 from 7:00pm - 8:00pm ET Via Zoom During this meeting we will be joined by Anna Gilmore, Sr. Director of Education & Advocacy, who will provide a tour of the new Care Connector tool and discuss with us its features and future developments. Care Connector is... Read More »

Event Series 2025 Chapter Meetings

St. Louis Chapter Virtual Meeting

Zoom Virtual Meeting , United States

St. Louis Chapter Virtual Meeting Tuesday, April 22, 2025 at 6:00 pm Virtual via Zoom (link will be sent upon receipt of RSVP) DETAILS: Please join us for conversation and support. RSVP: https://go.fshdsociety.org/l/701273/2023-03-01/42xfv2

Event Series 2025 Chapter Meetings

Colorado Chapter In-Person Meeting

Bean Fosters - Golden: 720 Golden Ridge Rd, D Golden, Colorado 80401 Bean Fosters - Golden: 720 Golden Ridge Rd, Ste. D, Golden, CO, United States

Colorado Chapter In-Person Meeting Saturday, April 26th, 2025 from 9:00 - 11:00 am Bean Fosters - Golden: 720 Golden Ridge Rd, D Golden, Colorado 80401 Informal gathering to catch up on the latest news and share our FSHD journey with friends over coffee. RSVP: https://go.fshdsociety.org/l/701273/2020-05-15/j1m9k

Event Series 2025 Chapter Meetings

Greater Philadelphia Chapter In-Person Meeting

Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA, United States

Greater Philadelphia Chapter In-Person Meeting Saturday, April 26, 2025 from 1:00 - 4:00pm ET Wissahickon Valley Public Library Community Room - 650 Skippack Pike, Blue Bell PA 19422 ***Option to attend virtually via Zoom (RSVP to receive the link) We will gather to catch up, socialize, and discuss BetterLife - a new platform dedicated to... Read More »

Event Series 2025 Chapter Meetings

Michigan Chapter Meeting

Zoom Virtual Meeting , United States

Michigan Chapter Meeting DATE/TIME: Monday, April 28th, 2024 - 7:00PM ET Virtually by Zoom. Please RSVP to receive the link. Please join us for conversation and support. RSVP: https://go.fshdsociety.org/l/701273/2023-04-09/433mcc

Event Series 2025 Chapter Meetings

Utah Chapter Virtual Meeting

Zoom Virtual Meeting , United States

Utah Chapter Virtual Meeting Tuesday, April 29, 2025, 7:00pm-8:00pm MT Virtual via Zoom - RSVP for the link Please join us for conversation and support. RSVP: https://go.fshdsociety.org/l/701273/2023-06-22/43jsb5

Event Series 2025 Chapter Meetings

New England Chapter Virtual Meeting

Zoom Virtual Meeting , United States

New England Chapter Virtual Meeting Wednesday, April 30, 2025, 7:00 pm - 8:00 pm ET Zoom - RSVP to get the link We’re excited to invite you to our New England Chapter virtual meeting for April. During this meeting, we will discuss: 1. Site proposals for the annual New England Chapter lunch; 2. Program updates... Read More »

Event Series 2025 Chapter Meetings

Bay Area Chapter Educational Meeting

Stanford Hospital, Hoover Pavilion 211 Quarry Road, 2nd floor, Room 208 - Palo Alto, Palo Alto, CA, United States

Bay Area Chapter Educational Meeting Sunday, May 4, 2025 from 1:00pm-4:00pm PT Stanford University, Hoover Pavilion. 211 Quarry Road. Palo Alto, CA 94304, in Hoover 208 At this meeting, we will be joined by Dr. David Jaffe from Stanford's Mechanical Engineering Department. He teaches "Perspectives in Assistive Technology" and works with students and community members... Read More »

Event Series 2025 Chapter Meetings

Chicagoland Chapter Monthly Virtual Meeting

Zoom Virtual Meeting , United States

Chicagoland Chapter Monthly Virtual Meeting 6:10 - 7:10 PM CT, every second Thursday of the month Zoom meeting - please RSVP for the link This meeting is a chance for our Chicago Chapter to engage with our FSHD community by building stronger connections, sharing resources, and providing support. Please join us for engaging conversation and... Read More »

Event Series 2025 Chapter Meetings

Sacramento In-Person Chapter Meeting

UC Davis - Arboretum UC Davis Arboretum Teaching Nursery 1046 Garrod Dr, Davis, CA, United States

Sacramento In-Person Chapter Meeting Saturday, May 10, 2025 from 10:00AM - 1:00PM PT UC Davis Arboretum - Google Map link: https://maps.app.goo.gl/icACixh8cvPqXGLK8 Join us for a leisurely afternoon at the UC Davis Arobetum. Bring your lunch, snacks and water. We can stroll through their beautiful garden and have lunch under a huge majestic oak tree. Oh,... Read More »

Event Series 2025 Chapter Meetings

North Carolina Third Thursday Chapter Meeting

Zoom Virtual Meeting , United States

North Carolina Third Thursday Chapter Meeting 7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the “Third Thursday” meetings of the North Carolina Chapter! Whether or not you’ve attended our group’s events before, we hope you will join us for this casual, conversational monthly meeting. We have no specific... Read More »

Event Series 2025 Chapter Meetings

PNW Chapter Baseball Game

Cheney Stadium, 2502 S Tyler St, Tacoma, WA 98405 Cheney Stadium 2502 S. Tyler St, Tacoma, WA, United States

PNW Chapter Baseball Game Sunday, June 1, 2025 at 1:00pm PT at Cheney Stadium, Tacoma Join us for an early World FSHD Day and Father's Day celebration as we cheer on the Rainiers! Your free tickets include admission to the game and a meal. We have secured wheelchair-accessible seating as well as seats with minimal stairs.... Read More »

Event Series 2025 Chapter Meetings

Chicagoland Chapter Monthly Virtual Meeting

Zoom Virtual Meeting , United States

Chicagoland Chapter Monthly Virtual Meeting 6:10 - 7:10 PM CT, every second Thursday of the month Zoom meeting - please RSVP for the link This meeting is a chance for our Chicago Chapter to engage with our FSHD community by building stronger connections, sharing resources, and providing support. Please join us for engaging conversation and... Read More »

Event Series 2025 Chapter Meetings

North Carolina Third Thursday Chapter Meeting

Zoom Virtual Meeting , United States

North Carolina Third Thursday Chapter Meeting 7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the “Third Thursday” meetings of the North Carolina Chapter! Whether or not you’ve attended our group’s events before, we hope you will join us for this casual, conversational monthly meeting. We have no specific... Read More »

Event Series 2025 Chapter Meetings

Chicagoland Chapter Monthly Virtual Meeting

Zoom Virtual Meeting , United States

Chicagoland Chapter Monthly Virtual Meeting 6:10 - 7:10 PM CT, every second Thursday of the month Zoom meeting - please RSVP for the link This meeting is a chance for our Chicago Chapter to engage with our FSHD community by building stronger connections, sharing resources, and providing support. Please join us for engaging conversation and... Read More »

Event Series 2025 Chapter Meetings

North Carolina Third Thursday Chapter Meeting

Zoom Virtual Meeting , United States

North Carolina Third Thursday Chapter Meeting 7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the “Third Thursday” meetings of the North Carolina Chapter! Whether or not you’ve attended our group’s events before, we hope you will join us for this casual, conversational monthly meeting. We have no specific... Read More »

Event Series 2025 Chapter Meetings

Chicagoland Chapter Monthly Virtual Meeting

Zoom Virtual Meeting , United States

Chicagoland Chapter Monthly Virtual Meeting 6:10 - 7:10 PM CT, every second Thursday of the month Zoom meeting - please RSVP for the link This meeting is a chance for our Chicago Chapter to engage with our FSHD community by building stronger connections, sharing resources, and providing support. Please join us for engaging conversation and... Read More »

Event Series 2025 Chapter Meetings

North Carolina Third Thursday Chapter Meeting

Zoom Virtual Meeting , United States

North Carolina Third Thursday Chapter Meeting 7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the “Third Thursday” meetings of the North Carolina Chapter! Whether or not you’ve attended our group’s events before, we hope you will join us for this casual, conversational monthly meeting. We have no specific... Read More »

Event Series 2025 Chapter Meetings

Chicagoland Chapter Monthly Virtual Meeting

Zoom Virtual Meeting , United States

Chicagoland Chapter Monthly Virtual Meeting 6:10 - 7:10 PM CT, every second Thursday of the month Zoom meeting - please RSVP for the link This meeting is a chance for our Chicago Chapter to engage with our FSHD community by building stronger connections, sharing resources, and providing support. Please join us for engaging conversation and... Read More »

Event Series 2025 Chapter Meetings

North Carolina Third Thursday Chapter Meeting

Zoom Virtual Meeting , United States

North Carolina Third Thursday Chapter Meeting 7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the “Third Thursday” meetings of the North Carolina Chapter! Whether or not you’ve attended our group’s events before, we hope you will join us for this casual, conversational monthly meeting. We have no specific... Read More »

Event Series 2025 Chapter Meetings

Chicagoland Chapter Monthly Virtual Meeting

Zoom Virtual Meeting , United States

Chicagoland Chapter Monthly Virtual Meeting 6:10 - 7:10 PM CT, every second Thursday of the month Zoom meeting - please RSVP for the link This meeting is a chance for our Chicago Chapter to engage with our FSHD community by building stronger connections, sharing resources, and providing support. Please join us for engaging conversation and... Read More »

Event Series 2025 Chapter Meetings

North Carolina Third Thursday Chapter Meeting

Zoom Virtual Meeting , United States

North Carolina Third Thursday Chapter Meeting 7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the “Third Thursday” meetings of the North Carolina Chapter! Whether or not you’ve attended our group’s events before, we hope you will join us for this casual, conversational monthly meeting. We have no specific... Read More »

Event Series 2025 Chapter Meetings

Chicagoland Chapter Monthly Virtual Meeting

Zoom Virtual Meeting , United States

Chicagoland Chapter Monthly Virtual Meeting 6:10 - 7:10 PM CT, every second Thursday of the month Zoom meeting - please RSVP for the link This meeting is a chance for our Chicago Chapter to engage with our FSHD community by building stronger connections, sharing resources, and providing support. Please join us for engaging conversation and... Read More »

Event Series 2025 Chapter Meetings

Chicagoland Chapter Monthly Virtual Meeting

Zoom Virtual Meeting , United States

Chicagoland Chapter Monthly Virtual Meeting 6:10 - 7:10 PM CT, every second Thursday of the month Zoom meeting - please RSVP for the link This meeting is a chance for our Chicago Chapter to engage with our FSHD community by building stronger connections, sharing resources, and providing support. Please join us for engaging conversation and... Read More »