First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Chaplain Deb Calhoun The Women on Wellness September 6th discussion will be on important documents we all need to consider. These are Advanced Directives, Living Will, Durable Power of Attorney for Healthcare and Finance. Our... Read More »
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT September is National Fall Prevention month . Who better to talk about fall prevention than people who are prone to falling (yes that is us -FSHDers!!!). Join us as we share tips and tricks from many in our FSHD community... Read More »
8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT Julie Cohen Mark your calendar and join us for a discussion on genetic counseling and family planning with Julie Cohen, ScM, CGC. Julie Cohen is the Director of Genetic Counseling Services at the Kennedy Krieger Institute and is also part... Read More »
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT September marks the one-year anniversary of the “Feeling Fit” program. This month, Frank Hanley returns and will provide a brief recap of the many milestones the program reached this past year and... Read More »
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT The community has shown interest in learning more about resources for modified vehicles and accessible driving licenses. Please join us for a conversation about accessible vehicles for individuals that need modifications to drive. Ally Roets will talk about her son's... Read More »
11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT How does nutrition impact the symptoms and progression of FSHD? This week, the group will discuss a webinar recorded in September 2022 about nutrition and FSHD. Watch the video in advance and compare notes and thoughts with us! The webinar,... Read More »
8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other care partners (the term we... Read More »
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join us for our second session of the month, “Why Exercise?” led by Frank Hanley. In this session, Frank will share the ins and outs of his struggle with FSHD and his... Read More »
