First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Thanks to our members for responding to our annual survey! Based on your feedback, this month's discussion topics revolve around planning for next steps: What to do when your current care giving plan isn’t working... Read More »
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT This month, Frank Hanley will present a series of exercises for the hip flexors. “I have had some difficulty with steps for a while," he says. "Suddenly, climbing steps has become quite a... Read More »
8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT Please join Robert Ro and the Young Adults group for a discussion on Preventative Care & Managing Secondary Complications! Many of us face challenges beyond reach and mobility, or know that we are at greater risk for secondary complications, and... Read More »
8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT This month, we'll be sharing news from the FSHD Society's annual Volunteer Leadership Summit in Chicago. Debbie Eggleston and Kristin Zwickau attended in person while Ally Roets beamed herself in via Zoom. They will discuss the progress in pediatric FSHD... Read More »
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT We review the hip flexor exercises from two weeks ago. We will be doing exercises on the floor so you may want to use a yoga mat. Frank Hanley will present a... Read More »
