Featured
Feeling Fit with FSHD
Feeling Fit with FSHD – Why exercise?
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join us for our second session of... Read More »
Loading view.
Gathering Place
Featured
Women on Wellness
Women on Wellness – Adaptive cooking
Zoom Virtual Meeting , United StatesFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Adaptive cooking and adaptive eating will be our topic this... Read More »
Featured
Wellness Hour on Emergency Preparedness
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT With all the floods, hurricanes, fires, and earthquakes in the news lately, we're reminded of... Read More »
Featured
Young Professionals
Young Professionals – Financial planning
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT Our guest is Don Burke, an FSHD Society member who recently retired from a high-impact... Read More »
Featured
Early-Onset Parent Roundtable
Early-Onset Parent Roundtable – Pediatric FSHD Summit
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT The end of September saw the first-ever workshop focused solely on pediatric FSHD. The workshop,... Read More »
Featured
Young Professionals
Young Professionals: Managing Symptoms
Zoom Virtual Meeting , United States11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT Managing Symptoms and Improving Quality of Life with Tara Hill and Glen Denehie FSHD Young... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United StatesPlease note, due to Halloween, October's CarePartner Hour has been moved to Wednesday, November 1, 2023. The time and link will remain the same. 8:00 – 9:00 PM ET |... Read More »
Featured
Wellness Hour – Finding reliable health info on the Internet
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT All of us consult "Dr. Google" when we have health questions, but how do we... Read More »
Featured
Wellness Hour – Chair dance party
Zoom Virtual Meeting , United StatesDancing with differences: A Moving Celebration of the Season 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Join us for a joyous and... Read More »
Featured
Wellness Hour (Virtual Meeting)
Wellness Hour
Zoom Virtual Meeting , United StatesWellness Hour Monthly Meeting 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community.... Read More »
Featured
Wellness Hour – Ice breaker
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT We're starting the new year off with an ice breaker online card game. Kind of... Read More »
Featured
Everything Early Onset
Everything Early Onset – Life Hacks
First Friday of every month 8:00 p.m. ET | 7:00 p.m. CT | 6:00 p.m. MT | 5:00 p.m. PT Do you have any unique strategies to cope with the... Read More »