Featured
Sharegiver Hour
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Loading view.
Member Meetings
Featured
Sharegiver Hour
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Featured
Sharegiver Hour
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Virginia Monthly Meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Virginia Monthly Meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
Sharegiver Hour
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Virginia Monthly Meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
Early-Onset Parent Roundtable
Zoom Virtual Meeting , United StatesTuesday, January 17th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »
East TN Chapter Meeting
Zoom Virtual Meeting , United StatesWe hope you will join us for the first Chapter meeting of the year! Reconnect with old friends, and meet some new folks from our region. This will be a... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
NYC/NJ Area Virtual Chapter Meeting
Virtual Denver, United States​​​​​ Saturday, January 21, 2023 10:00-11:00am Eastern Time Join us via Zoom HERE We hope you will join us for the first Chapter meeting of the year! Reconnect with old... Read More »
Bay Area Chapter Meeting
Stanford University 453 Quarry Road, Palo Alto, CA, United StatesChapter Meeting Sunday, January 22, 2023 1:00pm - 3:00pm Pacific Time Stanford University, Center for Academic Medicine, Grand Rounds Room 125 453 Quarry Road, Palo Alto, CA 94304 Our January... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Pacific Northwest’s Valentine’s Day Cocktails and Clinical Trials
Chris Haven 12005 7th Ave NW, Seattle, CA, United StatesFebruary 11, 2023 2:00pm – 4:30 pm Join us for this informative discussion about trials while sipping on a special pre-Valentine’s Day cocktail (N/A available) celebrating FSHD. Have you... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Tampa Chapter Meeting
True Food Kitchen 3645 Midtown Dr., Tampa, FL, United StatesDear Friends, Please mark your calendars for a get-together in Tampa! We'll be meeting up at the True Food Kitchen, and if the weather is nice enough, we'll enjoy our... Read More »
Featured
Early-Onset Parent Roundtable
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Ontario Virtual Chapter Meeting
Virtual TX, United StatesSaturday, February 25, 2023 10:00am ET Please join us for our first Chapter meeting of 2023! Grab a cup of coffee and join us for a casual discussion and Q&A... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Alberta Chapter Inaugural (Virtual) Meeting
Please join us for the first Alberta Chapter Meeting (virtual) on Sunday, March 12th at 10:00am MT via ZOOM! Please RSVP! Come and meet the Chapter Co-Directors, Jennie and Karen Camarta, and... Read More »
British Columbia Inaugural (Virtual) Chapter Meeting
Join us for the first official meeting as the new BC Chapter of the FSHD Society! We will meet virtually on Wednesday, March 15th 2023 at 7pm PT. Please RSVP to... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
Early-Onset Parent Roundtable
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »
Greater Philadelphia Chapter Meeting
Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA, United StatesCome meet us! Greater Philadelphia Chapter Meeting Saturday, March 25, 2023 10:00am - 12:00pm Eastern Time ​Wissahickon Valley Public Library 650 W Skippack Pike Blue Bell, PA 19422 Or via... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
Early-Onset Parent Roundtable – Special Needs Financial Planning
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Special Needs Planning Beyond One Day at a Time As a special needs family, living... Read More »
Canceled North Carolina Chapter Lunch
Parkway UCC 1465 Irving Street SW - Winston-Salem, Winston-Salem, NC, United StatesThis event has been canceled.
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
Early-Onset Parent Roundtable: Speech and swallowing
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Kiera Berggren Children with early-onset FSHD often struggle with speech and swallowing due to weak... Read More »
North Carolina Chapter “Fourth Mondays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Fourth Monday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us for a virtual chapter meeting. This will be our time to come together - where Connections, Hope, Healing, and Awareness... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
Early-Onset Parent Roundtable – Sharon Terry: mom, advocate, change-maker
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for a conversation with Sharon F. Terry, President and CEO of Genetic Alliance,... Read More »
North Carolina Chapter “Fourth Mondays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Fourth Monday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting. This will be our time to come together... Read More »
FSHD Lab Day at Nationwide Children’s Hospital
Nationwide Children's Hospital Education Center 575 South 18th Street, Columbus, OH, United StatesPlease join the Columbus Chapter and Nationwide Children's Hospital for an exciting day of research and community! Hear from Dr. Kevin Flanigan, Dr. Scott Harper, and Dr. Nizar Saad, then... Read More »
Featured
Early-Onset Parent Roundtable: Pediatric Updates from Dr. Jeffrey Statland
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Jeffrey Statland, MD Join us for a conversation with Jeffrey Statland, Professor of Neurology at... Read More »
North Carolina Chapter “Fourth Mondays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Fourth Monday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
Team Captain Social Hour
Zoom Web Conference , United StatesThursday, August 3, 2023 7pm ET/6pm CT/5pm MT/4pm PT We'll bring together all our team captains via Zoom, to celebrate and honor your hard work, help you pack your toolkit... Read More »
Western PA Summer Picnic
Adams Township Community Park 698 Valencia Rd, Mars, PA, United StatesWestern PA Summer Picnic Saturday, August 5th, 2023 Adams Township Community Park, 698 Valencia Road, Mars, PA 16046 More details forthcoming! We hope you can join us again this year... Read More »
Featured
Early-Onset Parent Roundtable – Pediatric Updates from Our Parent Group
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Many of you have asked us to periodically update you on the advocacy initiatives the... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Carolina Chapter “Fourth Mondays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Fourth Monday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
Early-Onset Parent Roundtable – Accessible Driver’s License and Modified Vehicles
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT The community has shown interest in learning more about resources for modified vehicles and accessible... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United States7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
Early-Onset Parent Roundtable – Pediatric FSHD Summit
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT The end of September saw the first-ever workshop focused solely on pediatric FSHD. The workshop,... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United States7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Mid-Atlantic Chapter Meeting
Join us for our next Mid-Atlantic Chapter Meeting on Saturday, November 11th, from 12:00 to 3:00 pm ET for an afternoon of in-person food and fun! We'll be celebrating our 2023 Walk & Roll... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United States7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our... Read More »
Michigan Chapter Meeting
Zoom Virtual Meeting , United StatesMeeting Invitation Thursday, November 16, 2023 7:00 - 8:00pmET Via Zoom Join us for our next Michigan Chapter Meeting on Thursday, November 16th, from 7:00 - 8:00 p.m. ET! We'll be celebrating our 2023 Walk... Read More »
Featured
Early-Onset Parent Roundtable with Eva Chin of Solve FSHD
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Eva Chin, PhD Join us for a conversation with Eva Chin, PhD, Executive Director of... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
Early-Onset Parent Roundtable – Youth voices
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Carden Wyckoff This month we will host a roundtable conversation with young adults with FSHD.... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United States7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesDECEMBER MEETING CANCELLED. See you in January! Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas,... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesDECEMBER 27 MEETING CANCELLED. See you in January! North Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting.... Read More »
Featured
Early-Onset Parent Roundtable – Advocating for your child’s education
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT For parents, figuring out how to advocate in schools for a child with a disability... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United States7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United States7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our... Read More »
Featured
Early-Onset Parent Roundtable – VLS report
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT This month, we'll be sharing news from the FSHD Society's annual Volunteer Leadership Summit in... Read More »