Lighting the Way to a Cure

  • BetterLife Login
  • Calendar
  • Blog
  • Patient Library
  • Financials
en Englishes Spanishfr Frenchde Germanit Italiannl Dutchru Russianzh-CN Chinese (Simplified)ja Japanesehi Hindiiw Hebrewpt Portuguesear Arabicig Igboko Koreanfa Persianpa Punjabiso Somalisw Swahilitr Turkishxh Xhosayo Yorubazu Zulu
en English
FSHD Header Logo
mobile-logo

  • Who We Are
        • About Us
          • History
          • Mission
          • Our Team
          • Financials
        • Our Impact
          • Therapeutic Accelerator
          • Education
          • Advocacy
          • Our Partners
        • Journey To A Cure
          • 2022 Donor Impact Report
  • Understanding FSHD
        • What is FSHD
          • Symptoms
          • Diagnosis
          • Early-onset FSHD
          • Genetic Testing
        • Living with FSHD
          • FSHD Navigator
          • FSHD Care Connector
          • Newly Diagnosed?
          • Finding Care
          • Symptom Management
          • Patient Library
        • FSHD University
          • Physical Health
          • Wellness
          • Research
  • Get Involved
        • Support Us
          • Ways to Give
          • Become a Torchbearer
          • Raise Awareness
          • Volunteer
          • Fundraise Your Way
        • Advance Research
          • What is a Clinical Trial?
          • Your Involvement Matters
          • Current Trials & Studies
        • Connect
          • Find Your Local Chapter
          • Join the Community
          • World FSHD Alliance
          • Online Communities
        • Events
          • Walk & Roll to Cure FSHD
          • FSHD Connect Conference
          • Events Calendar
          • FSHD 360 Regional Conferences
          • World FSHD Day
  • Research
        • For Patients & Families
          • BetterLife FSHD
          • Current Trials and Studies
          • TestFSHD genetic testing
          • True Cost of FSHD Study
        • For Researchers
          • International Research Congress
          • Resources
          • Research We Have Funded
          • Apply for a Grant
        • For Clinicians
          • FSHD Masterclass
          • ICD-10
        • For Industry
          • Therapeutic Accelerator
          • Clinical Trial Research Network
          • Drug Development Pipeline
          • Voice of the Patient Report
          • Project Mercury
  • News
    • Media Library
    • Blog
      • Living with FSHD
        • Health and Medicine
        • PT and Exercise
        • Tips and Tricks
        • Mental Health
      • FSHD Society News
      • FSHD Research
      • Fundraising & Events
      • Media & PR
    • FSHD Radio: Straight Talk with Tim Hollenback
    • The FSHD Advocate
  • Search
  • BetterLife Login
  • Calendar
  • Blog
  • Patient Library
  • Financials
  • JOIN US
  • Donate
  • JOIN US
  • Donate
4 events found.

Events Search and Views Navigation

Event Views Navigation

  • List
  • Month
  • Week
Today

October 2021

Tue 26
Featured Featured Oct 26, 2021 @ 8:00 pm - 9:00 pm Event Series Sharegiver Hour

Sharegiver Hour

8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers. Please respect our rules... Read More »

August 2022

Tue 30
Featured Featured Aug 30, 2022 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour: Helping with self-care

CarePartner Hour: Helping with self-care

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Calling all care partners to join us this month for a conversation about helping your loved one with self-care. This can be delicate ground as your partner wants to preserve as much independence as possible while adapting to losses in physical... Read More »

January 2023

Tue 31
Featured Featured Jan 31, 2023 @ 8:00 pm - 9:00 pm

CarePartner Hour: What are your “needs”?

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT What does your partner need from you or someone who helps with their care? This came up a few months ago, as we talked about how to decide when one needs professional help for their partner.  This conversation leads to how... Read More »

March 2025

Tue 25
Featured Featured Mar 25 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other care partners (the term we... Read More »

  • Today
  • Next Events
  • Google Calendar
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Export .ics file
  • Export Outlook .ics file

Sign up for Email Alerts

Stay up to date with the latest FSHD news and updates from FSHD Society.

CONNECT WITH US

Facebook Twitter YouTube LinkedIn Instagram Discord Threads Bluesky
Proud Member World FSHD Alliance (1)
Footer-Logo-min

General Mailing Address:

75 North Main Street, Suite 1073
Randolph, MA 02368 U.S.A.

Mail Donations to:

FSHD Society
P.O. Box 411617
Boston, MA 02241-1617

(781) 301-6060

  • DONATE
BetterLife Login
  • Donate
  • Join Us
  • Inclusivity & Equity
  • Privacy Policy
  • Contact Us
  • Glossary Of Scientific Terms
Digital Marketing by