BC Chapter World FSHD Day Celebration Event

Rogue Kitchen and Wetbar Gastown 601 West Cordova Street, Vancouver, British Columbia, Canada

8:30pm ET | 7:30pm CT | 6:30pm MT | 5:30pm PT BC Chapter -  World FSHD Day Celebration Event Thursday, June 20th from 5:30-8:00pm at Rogue Kitchen & Wetbar Gastown,... Read More »

Summer Park Party – Michigan Chapter

Tunnel Park 66 Lakeshore Ave, Holland, MI 49424 - North Picnic Pavilion Lakeshore Avenue, Holland, MI, United States

11AM - 3PM ET Summer Park Party - Michigan Chapter Please join us for an in-person social gathering on June 23rd. We are planning a summer park party from 11am... Read More »

Sacramento Chapter Meeting

Zoom Virtual Meeting , United States

9:00-10:00pm ET | 8:00-9:00pm CT | 7:00-8:00pm MT | 6:00-7:00pm PT Sacramento Virtual Chapter Meeting Wednesday, July 10, 2024 6:00-7:00pm PT on Zoom Join the Sacramento Chapter for our upcoming... Read More »

Chicago Chapter Virtual Meeting

Zoom Virtual Meeting , United States

7:00-8:00pm ET | 6:00-7:00pm CT | 5:00-6:00pm MT | 4:00-5:00pm PT Chicago Chapter Virtual Meeting Thursday, July 11, 2024 via Zoom Join us for our upcoming virtual Chicago Chapter Meeting... Read More »

2024 Triple Bypass Race

Saturday, July 13, 2024 The Triple Bypass The Triple Bypass stretches 118 miles, with 10,800 feet of elevation gain over 3 mountain passes: Juniper, Loveland, and Vail. George is the... Read More »

Western PA Virtual Chapter Meeting

Zoom Virtual Meeting , United States

7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Western PA Virtual Chapter Meeting Wednesday, July 17th, 7:00pm ET We will gather for conversation and to provide each... Read More »

New England Chapter In-Person Social Gathering

On the Border Mexican Grill & Cantina 1519 Silas Deane Highway, Rocky Hill, CT, United States

12-2pm ET | 11a-1pm CT | 10a-12pm MT | 9-11am PT New England Chapter In-Person Social Gathering Friday, July 19, 2024 from 12:00-2:00pm ET at On the Border (Rocky Hill)... Read More »

Western PA Chapter 3rd Annual Family Picnic

Adams Township Community Park, 698 Valencia Rd., Mars, PA 16046 Valencia Road, Mars, PA, United States

Western PA Chapter 3rd Annual Family Picnic Saturday, August 3rd, 12:00pm ET Location: Adams Township Community Park, 698 Valencia Rd., Mars, PA 16046 Please join us for this fun, in-person... Read More »

Los Angeles Virtual Chapter Meeting

Zoom Virtual Meeting , United States

Los Angeles Virtual Chapter Meeting Wednesday, August 7th | 6:00 - 7:00 pm PT Join us on Wednesday, August 7th from 6:00 pm - 7:00 pm for our upcoming virtual... Read More »

2024 Falmouth Road Race

Sunday, August 18, 2024 2024 Falmouth Road Race The 2024 ASICS Falmouth Road Race promises to be an exciting event celebrating 52 years of running the iconic course along the... Read More »

St. Louis Chapter In-Person Support Meeting

Webster Groves Public Library - 301 E Lockwood Ave, Webster Groves, MO 63119 East Lockwood Avenue, St. Louis, MO, United States

St. Louis Chapter In-Person Support Meeting Tuesday, August 20th, 2024, 7:00-8:00pm CT Webster Groves Public Library - 301 E Lockwood Ave, Webster Groves, MO 63119 We invite all of our... Read More »

Dakotas Chapter Meeting

12:00-2:00pm ET | 11:00am-1:00pm CT | 10:00am-12:00pm MT | 9:00am-11:00am PT Dakotas Chapter Meeting Saturday, August 24, 2024 Location: TBD Restaurant Join the Dakotas Chapter for a special community lunch... Read More »

San Diego Chapter Ice Cream Social

Hilltop Community Park, 9711 Oviedo Way, San Diego, CA 92129 Oviedo Way, San Diego, CA, United States

6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT San Diego Chapter Ice Cream Social Sponsored by Kate Therapeutics Sunday, August 25, 2024 from 3:30 - 5:30pm PT... Read More »

Southeast Multi-Chapter Virtual Meeting

Southeast Multi-Chapter Virtual Meeting Tuesday, August 27, 2024 at 6:00pm ET Amy Halseth and Erika Escartin from Avidity Biosciences will give a short presentation on the recent data from FORTITUDE,... Read More »

Western PA Chapter Drum & Roll Prep Virtual Meeting

Zoom Virtual Meeting , United States

Western PA Chapter Drum & Roll Prep Virtual Meeting Thursday, August 29, 2024 7:00-8:30pm ET RSVP here: go.fshdsociety.org/l/701273/2023-05-09/439tq1 Join our virtual meeting for a discussion on how we can make... Read More »

New England Virtual Chapter Meeting

New England Virtual Chapter Meeting Thursday, September 12, 2024 at 7:00 PM Meeting Agenda: Walk Leader, Lexi Pappas, will briefly talk about the Walk & Roll taking place on 9/22... Read More »

Virtual Screening: Good Bad Things

Virtual TX, United States

Virtual Screening: Good Bad Things Missed seeing Good Bad Things in theaters? Get your tickets for a virtual screening this weekend. The film will be available from 6:00pm PST on... Read More »

Virginia Chapter Monthly Virtual Meeting

Zoom Virtual Meeting , United States

Virginia Chapter Monthly Virtual Meeting Tuesday, September 24th, 6:00pm ET Please join us for this casual, conversational monthly meeting. We look forward to catching up with everyone, sharing our updates... Read More »

Alberta Chapter Virtual Meeting

Zoom Virtual Meeting , United States

Alberta Chapter Virtual Meeting All Canadian FSHD Community Members Welcome Wednesday, October 2, 2024 7:00pm - 8:00pm MT RSVP: https://go.fshdsociety.org/l/701273/2023-01-17/42q91r Following the disappointing news from Fulcrum, Neil Camarta will be... Read More »

Greater Philadelphia Chapter Meeting

Bryn Mawr Rehabilitation Hospital - 414 Paoli Pike, Malvern PA 19355 Paoli Pike, Malvern, PA, United States

Greater Philadelphia Chapter Meeting Saturday, October 5, 2024, 10:00am-1:00pm ET Location: Bryn Mawr Rehabilitation Hospital - 414 Paoli Pike, Malvern PA 19355 RSVP here: https://go.fshdsociety.org/l/701273/2023-02-14/42vknk Please join us for this... Read More »

Western PA Chapter Virtual Meeting

Zoom Virtual Meeting , United States

Western PA Chapter Virtual Meeting Tuesday, October 8, 2024 | 7:00-8:00pm ET RSVP: https://go.fshdsociety.org/l/701273/2023-05-09/439tq1 Join our virtual meeting to talk about the disappointing news that Fulcrum has halted development of... Read More »

10/23 Chicago Chapter Virtual Meeting

Zoom Virtual Meeting , United States

Chicago Chapter Virtual Meeting Wednesday, October 23, 2024 | 4:00-5:00pm CT Join us to discuss chapter updates and start thinking about activities for next year. We will also have the... Read More »

10/23 New England Virtual Chapter Meeting

Zoom Virtual Meeting , United States

New England Chapter Virtual Meeting Wednesday, October 23, 2024 - 7:00pm ET Please join us for our next virtual chapter meeting! We will cover: A recap of our recent Walk... Read More »

Pacific Northwest Chapter Winter Education Meeting

Zoom Virtual Meeting , United States

Pacific Northwest Chapter Winter Education Meeting November 2, 2024, Noon to 2pm Topic: Strength Training for Rehabilitation and Maintenance in FSHD. Our guest speaker will be Alex Walker of Walker... Read More »

Colorado Chapter Meeting (In-Person)

Landsdowne Arms Restaurant Dorchester Street, Highlands Ranch, CO, United States

Colorado Chapter Meeting (In-Person) Sunday, November 17, 2024 | 12:00-2:00pm MT, followed by the Broncos game Landsdowne Arms Restaurant 9352 Dorchester St, Highlands Ranch, CO 80129 RSVP: https://go.fshdsociety.org/l/701273/2023-03-30/4327q4 Join the... Read More »

Ontario Chapter Brunch Meeting

Milestones Richmond Hill 30 High Tech Rd, Richmond Hill, ON, Canada

Ontario Chapter Brunch Meeting Sunday November 24th, 2024: 11:00am - 1:00pm ET Milestones Richmond Hill (30 High Tech Rd. Richmond Hill ON L4B 4L9) Join our Ontario FSHD friends for... Read More »

St. Louis Chapter Holiday Gathering

4Hands Brewery 17081 N Outer 40 Rd, Chesterfield, United States

St. Louis Chapter Holiday Gathering Saturday, December 7th, 2:00-4:00pm CT 4Hands Brewery, 17081 N Outer 40 Rd, Chesterfield, MO 63005 RSVP: https://go.fshdsociety.org/l/701273/2023-06-22/43jsb5 Join us for a special holiday gathering to... Read More »

12/11/24 NYC/NJ-Area Virtual Chapter Meeting

Zoom Virtual Meeting , United States

Greater NYC/NJ-area Chapter Virtual Meeting - Wednesday December 11th, 6pm ET Dear NYC & NJ area FSHD Friends, Please join our local FSHD Community for a virtual meeting by zoom... Read More »

New England Chapter Virtual Meeting

Zoom Virtual Meeting , United States

New England Chapter Virtual Meeting Wednesday, December 11, 2024 | 7:00-8:00pm ET RSVP: https://go.fshdsociety.org/l/701273/2023-03-03/42xr1c Join us for chapter and FSHD Society updates, a debrief and takeaways from the November 2nd... Read More »