Dakotas Chapter Meeting

12:00-2:00pm ET | 11:00am-1:00pm CT | 10:00am-12:00pm MT | 9:00am-11:00am PT Dakotas Chapter Meeting Saturday, August 24, 2024 Location: TBD Restaurant Join the Dakotas Chapter for a special community lunch... Read More »

San Diego Chapter Ice Cream Social

Hilltop Community Park, 9711 Oviedo Way, San Diego, CA 92129 Oviedo Way, San Diego, CA, United States

6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT San Diego Chapter Ice Cream Social Sponsored by Kate Therapeutics Sunday, August 25, 2024 from 3:30 - 5:30pm PT... Read More »

Southeast Multi-Chapter Virtual Meeting

Southeast Multi-Chapter Virtual Meeting Tuesday, August 27, 2024 at 6:00pm ET Amy Halseth and Erika Escartin from Avidity Biosciences will give a short presentation on the recent data from FORTITUDE,... Read More »

Western PA Chapter Drum & Roll Prep Virtual Meeting

Zoom Virtual Meeting , United States

Western PA Chapter Drum & Roll Prep Virtual Meeting Thursday, August 29, 2024 7:00-8:30pm ET RSVP here: go.fshdsociety.org/l/701273/2023-05-09/439tq1 Join our virtual meeting for a discussion on how we can make... Read More »

New England Virtual Chapter Meeting

New England Virtual Chapter Meeting Thursday, September 12, 2024 at 7:00 PM Meeting Agenda: Walk Leader, Lexi Pappas, will briefly talk about the Walk & Roll taking place on 9/22... Read More »

Virtual Screening: Good Bad Things

Virtual TX, United States

Virtual Screening: Good Bad Things Missed seeing Good Bad Things in theaters? Get your tickets for a virtual screening this weekend. The film will be available from 6:00pm PST on... Read More »

Virginia Chapter Monthly Virtual Meeting

Zoom Virtual Meeting , United States

Virginia Chapter Monthly Virtual Meeting Tuesday, September 24th, 6:00pm ET Please join us for this casual, conversational monthly meeting. We look forward to catching up with everyone, sharing our updates... Read More »

Alberta Chapter Virtual Meeting

Zoom Virtual Meeting , United States

Alberta Chapter Virtual Meeting All Canadian FSHD Community Members Welcome Wednesday, October 2, 2024 7:00pm - 8:00pm MT RSVP: https://go.fshdsociety.org/l/701273/2023-01-17/42q91r Following the disappointing news from Fulcrum, Neil Camarta will be... Read More »

Greater Philadelphia Chapter Meeting

Bryn Mawr Rehabilitation Hospital - 414 Paoli Pike, Malvern PA 19355 Paoli Pike, Malvern, PA, United States

Greater Philadelphia Chapter Meeting Saturday, October 5, 2024, 10:00am-1:00pm ET Location: Bryn Mawr Rehabilitation Hospital - 414 Paoli Pike, Malvern PA 19355 RSVP here: https://go.fshdsociety.org/l/701273/2023-02-14/42vknk Please join us for this... Read More »

Western PA Chapter Virtual Meeting

Zoom Virtual Meeting , United States

Western PA Chapter Virtual Meeting Tuesday, October 8, 2024 | 7:00-8:00pm ET RSVP: https://go.fshdsociety.org/l/701273/2023-05-09/439tq1 Join our virtual meeting to talk about the disappointing news that Fulcrum has halted development of... Read More »

10/23 Chicago Chapter Virtual Meeting

Zoom Virtual Meeting , United States

Chicago Chapter Virtual Meeting Wednesday, October 23, 2024 | 4:00-5:00pm CT Join us to discuss chapter updates and start thinking about activities for next year. We will also have the... Read More »

10/23 New England Virtual Chapter Meeting

Zoom Virtual Meeting , United States

New England Chapter Virtual Meeting Wednesday, October 23, 2024 - 7:00pm ET Please join us for our next virtual chapter meeting! We will cover: A recap of our recent Walk... Read More »

Pacific Northwest Chapter Winter Education Meeting

Zoom Virtual Meeting , United States

Pacific Northwest Chapter Winter Education Meeting November 2, 2024, Noon to 2pm Topic: Strength Training for Rehabilitation and Maintenance in FSHD. Our guest speaker will be Alex Walker of Walker... Read More »

Colorado Chapter Meeting (In-Person)

Landsdowne Arms Restaurant Dorchester Street, Highlands Ranch, CO, United States

Colorado Chapter Meeting (In-Person) Sunday, November 17, 2024 | 12:00-2:00pm MT, followed by the Broncos game Landsdowne Arms Restaurant 9352 Dorchester St, Highlands Ranch, CO 80129 RSVP: https://go.fshdsociety.org/l/701273/2023-03-30/4327q4 Join the... Read More »

Ontario Chapter Brunch Meeting

Milestones Richmond Hill 30 High Tech Rd, Richmond Hill, ON, Canada

Ontario Chapter Brunch Meeting Sunday November 24th, 2024: 11:00am - 1:00pm ET Milestones Richmond Hill (30 High Tech Rd. Richmond Hill ON L4B 4L9) Join our Ontario FSHD friends for... Read More »

St. Louis Chapter Holiday Gathering

4Hands Brewery 17081 N Outer 40 Rd, Chesterfield, United States

St. Louis Chapter Holiday Gathering Saturday, December 7th, 2:00-4:00pm CT 4Hands Brewery, 17081 N Outer 40 Rd, Chesterfield, MO 63005 RSVP: https://go.fshdsociety.org/l/701273/2023-06-22/43jsb5 Join us for a special holiday gathering to... Read More »

12/11/24 NYC/NJ-Area Virtual Chapter Meeting

Zoom Virtual Meeting , United States

Greater NYC/NJ-area Chapter Virtual Meeting - Wednesday December 11th, 6pm ET Dear NYC & NJ area FSHD Friends, Please join our local FSHD Community for a virtual meeting by zoom... Read More »

New England Chapter Virtual Meeting

Zoom Virtual Meeting , United States

New England Chapter Virtual Meeting Wednesday, December 11, 2024 | 7:00-8:00pm ET RSVP: https://go.fshdsociety.org/l/701273/2023-03-03/42xr1c Join us for chapter and FSHD Society updates, a debrief and takeaways from the November 2nd... Read More »