CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
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North Texas Virtual Chapter Meeting
Virtual Denver, United States8:00pm ET | 7:00pm CT | 6:00pm MT | 5:00pm PT North Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a... Read More »
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Everything Early Onset
Everything Early Onset – Hang out with cool people!
First Friday of every month 8:00 p.m. ET | 7:00 p.m. CT | 6:00 p.m. MT | 5:00 p.m. PT Would you rather sit alone and bored on your Friday... Read More »
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New England FSHD 360
University of Massachusetts Medical Center Plantation Street, Worcester, Massachusetts, United StatesCo-hosted by the UMass Wellstone Center for FSHD and the FSHD Society FSHD research and drug development is in a new era. Do you know what’s happening and how this... Read More »
Pacific Northwest Chapter Winter Education Meeting
Zoom Virtual Meeting , United StatesPacific Northwest Chapter Winter Education Meeting November 2, 2024, Noon to 2pm Topic: Strength Training for Rehabilitation and Maintenance in FSHD. Our guest speaker will be Alex Walker of Walker... Read More »
2024 Drum & Roll to Cure FSHD
National Aviary Allegheny Commons Park2024 Drum & Roll to Cure FSHD Sunday, November 3, 2024, 1:00pm National Aviary - The Garden Room - Pittsburgh, PA In this unique and amazing event, FSHD warriors will... Read More »
2024 North Texas Virtual Chapter Meetings
Zoom Virtual Meeting , United States8:00pm ET | 7:00pm CT | 6:00pm MT | 5:00pm PT North Texas Virtual Chapter Meeting, 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a... Read More »
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Women on Wellness
Women On Wellness – Moving to a new environment Part 2
Zoom Virtual Meeting , United StatesFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT There was so much to discuss in last month's WOW... Read More »
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Wellness Hour (Virtual Meeting)
Wellness Hour
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our monthly Zoom meeting on Wellness is held on the second Monday of each month... Read More »
FSHD Radio: Straight Talk with Tim Hollenback
Facebook and YouTubeOn the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who... Read More »
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Feeling Fit with FSHD
Feeling Fit with FSHD – Breathe, stretch, and flex
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT In this “Feeling Fit” session, Frank Hanley... Read More »
Colorado Chapter Meeting (In-Person)
Landsdowne Arms Restaurant Dorchester Street, Highlands Ranch, CO, United StatesColorado Chapter Meeting (In-Person) Sunday, November 17, 2024 | 12:00-2:00pm MT, followed by the Broncos game Landsdowne Arms Restaurant 9352 Dorchester St, Highlands Ranch, CO 80129 RSVP: https://go.fshdsociety.org/l/701273/2023-03-30/4327q4 Join the... Read More »
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Young Professionals
Young Adults – Relationships
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT How do you navigate an intimate relationship when you have a condition like FSHD? How... Read More »
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Early-Onset Parent Roundtable
Parents’ Roundtable
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Parents' Roundtable on the 3rd Tuesday of each month, where... Read More »
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FSHD University: ReSolve – What We Have Learned
Zoom Web Conference , United States19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT ReSolve – What We Have Learned Presented by Kate... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United States7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our... Read More »
Ontario Chapter Brunch Meeting
Milestones Richmond Hill 30 High Tech Rd, Richmond Hill, ON, CanadaOntario Chapter Brunch Meeting Sunday November 24th, 2024: 11:00am - 1:00pm ET Milestones Richmond Hill (30 High Tech Rd. Richmond Hill ON L4B 4L9) Join our Ontario FSHD friends for... Read More »
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2024 FSHD Straight Talk Thanksgiving Special
It's our annual Thanksgiving Special and this year we're featuring musicians living with FSHD. Tune in for interviews, instrumentals, and more.
Virginia Chapter, Monthly Virtual Chapter Meeting
Zoom Virtual Meeting , United States6:00pm ET | 5:00pm CT | 4:00pm MT | 3:00pm PT Virginia Chapter Monthly Virtual Meeting (occurs every 4th Tuesday of the month). RSVP via the below button to ensure... Read More »
St. Louis Chapter Holiday Gathering
4Hands Brewery 17081 N Outer 40 Rd, Chesterfield, United StatesSt. Louis Chapter Holiday Gathering Saturday, December 7th, 2:00-4:00pm CT 4Hands Brewery, 17081 N Outer 40 Rd, Chesterfield, MO 63005 RSVP: https://go.fshdsociety.org/l/701273/2023-06-22/43jsb5 Join us for a special holiday gathering to... Read More »
12/11/24 NYC/NJ-Area Virtual Chapter Meeting
Zoom Virtual Meeting , United StatesGreater NYC/NJ-area Chapter Virtual Meeting - Wednesday December 11th, 6pm ET Dear NYC & NJ area FSHD Friends, Please join our local FSHD Community for a virtual meeting by zoom... Read More »
New England Chapter Virtual Meeting
Zoom Virtual Meeting , United StatesNew England Chapter Virtual Meeting Wednesday, December 11, 2024 | 7:00-8:00pm ET RSVP: https://go.fshdsociety.org/l/701273/2023-03-03/42xr1c Join us for chapter and FSHD Society updates, a debrief and takeaways from the November 2nd... Read More »
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FSHD University: Annual Drug Development Update
Zoom Web Conference , United States19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT Annual Drug Development Update Presented by Nicholas Johnson, MD,... Read More »
Bay Area Chapter Hybrid Meeting
Stanford Hospital, Hoover Pavilion 211 Quarry Road, 2nd floor, Room 208 - Palo Alto, Palo Alto, CA, United StatesBay Area Chapter Hybrid Meeting (In-Person and Virtual) Sunday, January 12, 2025 | 1:00-4:00pm PT Hoover Pavilion at Stanford University - in Hoover 208 211 Quarry Rd., Palo Alto, CA... Read More »
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FSHD University
FSHD University: Mindfulness for Reducing Stress with Ginny Wholley
Zoom Web Conference , United States19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT Mindfulness for Reducing Stress, with Ginny Wholley. Chronic stress... Read More »
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FSHD University – The Burden of FSHD
Zoom Web Conference , United States19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT The Burden of FSHD Despite the significant disease burden,... Read More »
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2025 International Research Congress on FSHD
Save the date! The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. With the recent advances in FSHD... Read More »