North Texas Virtual Chapter Meeting
Zoom Virtual Meeting , United States8:00pm ET | 7:00pm CT | 6:00pm MT | 5:00pm PT North Texas Virtual Chapter Meeting, 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a... Read More »
21 events found.
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Women on Wellness
Women On Wellness – New Year, New Opportunities
Zoom Virtual Meeting , United StatesFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Today we'll have an open discussion, starting with the topic... Read More »
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Feeling Fit with FSHD
Feeling Fit with FSHD – Chair yoga
Zoom Virtual Meeting , United StatesFeeling Fit with FSHD 18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Let's start the... Read More »
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Wellness Hour (Virtual Meeting)
Wellness Hour – What about wheelchairs?
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Wheelchairs and scooters are a topic of evergreen interest to our community and some of... Read More »
New England Chapter Virtual Meeting
Zoom Virtual Meeting , United StatesNew England Chapter Virtual Meeting Monday, January 13, 2025 | 7:00-8:00pm ET RSVP: https://go.fshdsociety.org/l/701273/2023-03-03/42xr1c Join us for chapter and FSHD Society updates, a debrief and takeaways from the November 2nd... Read More »
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Everything Early Onset
Everything Early Onset – Fun with trivia
NEW DATE AND TIME: Second Monday of every month 7:00 p.m. ET | 6:00 p.m. CT | 5:00 p.m. MT | 4:00 p.m. PT Join us at Everything Early Onset... Read More »
FSHD Straight Talk with Tim Hollenback
Facebook, YouTube, and anywhere you listen to podcasts , United StatesOn the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who... Read More »
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FSHD University
FSHD University: The what, why and how of mindfulness
Zoom Web Conference , United States19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT Mindfulness is a practice that has been shown in... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United States7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our... Read More »
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Young Adults
Young Adults – Nutrition and supplements
Zoom Virtual Meeting , United StatesYoung Adults Monthly Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT Our guest this month is Mark Tarnopolsky, MD PhD, professor of... Read More »
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Parent Roundtable
Parents’ Roundtable – FSHD science with Heloise
Zoom Virtual Meeting , United StatesParents' Roundtable 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Heloise Hoffmann Heloise Hoffmann, now a student at Stanford University, explains the science... Read More »
Virginia Chapter Monthly Virtual Meeting
Zoom Virtual Meeting , United StatesVirginia Chapter Monthly Virtual Meeting Tuesday, January 28, 2025 6:00pm - 7:00pm ET Virtual via Zoom - RSVP for the link Join our monthly meeting for casual conversations! RSVP: https://go.fshdsociety.org/l/701273/2023-03-14/42z7g7
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CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
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2025 FSHD Connect-Europe
Amsterdam, The NetherlandsFSHD Europe will organize, in collaboration with the FSHD Society, the first FSHD Connect Europe meeting on June 13th – June 15th, 2025, in Amsterdam, The Netherlands. This is a... Read More »
Western PA Chapter Virtual Meeting – BetterLife Demo
Zoom Virtual Meeting , United StatesWestern PA Chapter Virtual Meeting - BetterLife Demo Thursday, February 27, 2025 from 6:00pm - 7:00pm ET Via Zoom (Link will be sent upon receipt of RSVP) During this meeting... Read More »
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2025 FSHD 360s
Ontario FSHD 360
Burnhamthorpe Community Centre 1500 Gulleden Dr. Mississauga, ON L4X 2T7 CANADA Burnhamthorpe Community Centre 1500 Gulleden Dr, Mississauga, ON, CanadaOntario FSHD 360 May 3 from 9:00 AM to 4:00 PM Co-hosted by FSHD Canada Foundation and FSHD Society Burnhamthorpe Community Centre 1500 Gulleden Dr. Mississauga, ON L4X 2T7 CANADA... Read More »
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2025 Denver Colfax Marathon
Denver Colorado CO, United StatesJoin the Denver Colfax Marathon Team for the FSHD Society! The Denver Colfax Marathon is a nationally recognized event featuring unique courses incorporating the iconic landmarks of the Mile-High City.... Read More »
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2025 International Research Congress on FSHD
Save the date! The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. With the recent advances in FSHD... Read More »
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2025 Triple Bypass
The Triple Bypass The Triple Bypass stretches 118 miles, with 10,800 feet of elevation gain over 3 mountain passes: Juniper, Loveland, and Vail. The race will take place on July... Read More »
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2025 Falmouth Road Race
Sunday, August 18, 2024 2025 Falmouth Road Race The 2025 ASICS Falmouth Road Race promises to be an exciting event celebrating 53 years of running the iconic course along the... Read More »
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FSHD University – The Burden of FSHD
Zoom Web Conference , United States19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT The Burden of FSHD Despite the significant disease burden,... Read More »